My husband has mobility issues

My husband is 76 and was recently diagnosed. The neurologist thought he had Myasthenia Gravis first. It's definitely challenging.

We just bought a lifting recliner for my husband. It's a godsend.
He still drives and uses the handles inside our SUVto get in and out. So far he's ok getting in and out of bed. On good days he uses a cane, on bad days he uses a rollator and if were going somewhere with a lot of walking he uses a scooter.
Wishing you the best.

Hello
I just wanted you to be aware of a Webinar from The Davis Phinney Foundation in February. The topic of the Webinar is, "OVERCOMING HURDELS IN EXERCISE. Here is a link to register. If you are not available on the date of the Webinar, you can still register and a link will be sent to you so that you can view the recording.
http://dpf.convio.net/site/MessageViewer;jsessionid=00000000.app20127b?em_id=21801.0&dlv_id=31406&pgwrap=n&NONCE_TOKEN=7C33C474A74A359E1E633B6B7A841335

I don't think you are mean. I call it being realistic and working with what you can do. Optimism is a great trait to have. Kudos to you!

My spouse and I used to go to the local YMCA. They had a Parkinsons program. We went three times a week. It helped us both. I tagged him. In other words I made sure the weights were right and helped him count or if I noticed a problem we would always do the workout together. I did it as a caregiver. Our insurance helped and I was free. He was evaluated first for his abilities prior. This was before the pandemic. He cannot do those things as he has no stamina. Using his hands for fine motor thing's is a problem now. He has had to stop lots of little things this past year due to progression of his Parkinsons and other illnesses. This has not helped his moral . I ordered some weights that are coming today. I have started working with him on a chair with exercises. He has done well with showing him..not so much in remembering. But I am sure he will at least have movement. Standing is hard and I feel he will need his walker more and more. I hope that helps. Hugs to you both.

My spouse was diagnosed in 2018. He has changed alot this year. Spouses and Caregivers do feel anxious and sometimes concerned about the changes. It is very hard to see the changes. Walking and getting other conditions that intensify their condition is so overwhelming to the both of us, The best to you and keep yourself healthy and updated. Medications work for awhile and some don't ! Report changes to your physician and do your research and stay informed. Connect with the local chapter of Parkinsons Association. Write your symptoms down and any side effects. This connection group has been a God moment for me! Hugs to you !💓

Hello,

You'll need to copy and paste. The first program is slow, so fast forward show to wherever you may find information relevant. This guy (John Argue) has taught me how to sit down and stand up from a couch and chair.

I find YouTube a fabulous resource for Parkinson's disease sufferers. I especially find Laurie Mischley's presentations and webinars valuable and inspirational. .

My husband says he does not have “off” time, but I m not certain he’s correct. He also believes his medication doesn’t help but I know that’s not true.

We now have a motorized lift chair that he sleeps in because it’s too difficult to get out of bed, even with a bed rail. That was working for a while but now he’s struggling to get out of the chair. He fell over the weekend due to temporary loss of balance.

I must admit I am very worried about the future.

Best wishes to all on this forum. Cindy

@cmdw2600 I share your frustration as it is the same way in our house. But frankly, the low voice part is the least of my concern.

Hello @cmdw2600

I think that therapies for both speech and movement will be very helpful to you and your husband. I always think that PD is somewhat of a family disorder in that everyone who relates to a PD patient is somehow affected by the symptoms.

Until your husband is able to connect with a physical therapist and a speech therapist, these videos might be a good start in helping with both the movements and speech limitations of PD:
--PD Exercises at Home

Yes, my husband does have physical manifestations of PD as well as the soft voice. He has been doing some PT but does not feel it has helped yet. The voice issue is very frustrating for both of us. I am 70 and my hearing is not what it used to be. I am constantly saying “what!?” which is annoying to him as he has to repeat almost everything. I will suggest therapy for this also.
Thank you! Cindy