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lyndylou
@lyndylou

Posts: 4
Joined: Sep 11, 2017

mitral/tricuspid valves

Posted by @lyndylou, Sep 10, 2017

I had open heart surgery in March 2013 to repair my mitral valve. It should hve been to repair both the mitral and tricuspid valves but my surgeon said that in his experience following a mitral repair (or replacement) the tricuspid would usually “sort itself out” and no longer be a problem.Well it was found that this hadn’t worked in my case and my tricuspid valve problem went from mild to severe but with no follow up treatment. Has anyone else found this? I have now moved home and live on a remote island in Shetland where medical treatment is not easy to access.

REPLY

Hello, @lyndylou, and welcome to Mayo Clinic Connect. I’m so sorry that the triscuspid valve did not sort itself out in your case, and now you are where medical treatment isn’t easily accessible. How frustrating.

I thought you’d like to meet some of our Connect members who have experience with heart surgery and recovery, like @downhillbob, @predictable, @jackj @jc2buds @callalily74 @yarrum @michael123 @callalily74 @ronbee @thankful @cynaburst @lyndamm. I’d ask them to please join this conversation.

What symptoms are you experiencing from the tricuspid valve problem currently?

Thank you for your contact. I am currently experiencing increasing breathlessness, chronic fatigue, increased pulsing and bulging in my neck especially on the left side and a pretty permanently bloated tummy. I also have COPD, pulmonary hypertension, fybromialgia and both osteo and rheumatoid arthritis, hows that for a handful!

Is anyone familiar with what treatments are available for tricuspid valve problems?

I had my second open heart surgery in Nov 2113. I had my miral valve replaced with an artificial valve, and they repaired my triscipudit valve. I am doing better than I was, but still have afib all the time and problems with nausea most days. If I were you I would try to get back to see your heart Dr soon. Take care.

Hi, thank you for your reply. I have much the same daily problems as yourself to contend with, nausea etc. I went to a pain clinic on Tuesday and as a last resort was put on reboxetine. Does this work for anyone else? How were you with your second heart surgery? My consultant wasn’t too keen on a second session but at that point it was only 6 weeks post op. for my first, I hope that things will be different now as the tricuspid is now at severe level. Always something eh? hey ho not to worry, I hope that you continue to do well, all the best.

@lyndylou

Hi, thank you for your reply. I have much the same daily problems as yourself to contend with, nausea etc. I went to a pain clinic on Tuesday and as a last resort was put on reboxetine. Does this work for anyone else? How were you with your second heart surgery? My consultant wasn’t too keen on a second session but at that point it was only 6 weeks post op. for my first, I hope that things will be different now as the tricuspid is now at severe level. Always something eh? hey ho not to worry, I hope that you continue to do well, all the best.

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My second heart surgery went well, and I felt really good for about a year after sugery and then my nausea came back and my afib got worse. I have afib all the time now instead of just off and on as before. Mine was also at a sever level before surgery. Hope all goes.well for you. Please keep us updated. Thanks.

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