Mild back pain

Posted by tconz @tconz, Dec 31, 2022

Is occasional upper back pain associated with NTM?

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@tconz – That's a good question. I lived with active NTM for a long time before learning what it was and getting treated. And my back ALWAYS hurt. The pulmonologist insisted they weren't related. Now, 5 years later, I can tell you that my PT explained that they are connected – but not how you might think.

Here is one way it can happen:
Think of a cough as a type of spasm. When you cough, many muscles are involved, and a chain reaction begins. Over time one or more can become irritated, and begin to hurt. Then your body protectively tightens up to minimize the pain, pulling even more muscles into the reaction. And your mind begins to tell you to stay still because your body hurts, tightening muscles even more. Eventually, you can have pain in strange places. Or, in my case, pain EVERYWHERE.

Another is through inactivity, if you feel unwell, fatigued, etc, you move less. Or you park in your recliner, where your posture is less than ideal. You may hold your pone or tablet for long periods, and muscles can tighten up.

A third is if you are prescribed an antibiotic regimen. Many carry a warning that side effects can include muscle aches and pain. In your own body the most vulnerable muscles will ache first. For me it was my arthritic hands, followed by my back, followed by… until I was a miserable lump.

Do any of these describe your situation? If so, we can have a conversation about some ways to deal with it.

Sue
PS One more – sitting with my nebulizer mouthpiece clamped in my jaw can still tighten my neck and upper back, even though I now know how to prevent it!

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@sueinmn

@tconz – That's a good question. I lived with active NTM for a long time before learning what it was and getting treated. And my back ALWAYS hurt. The pulmonologist insisted they weren't related. Now, 5 years later, I can tell you that my PT explained that they are connected – but not how you might think.

Here is one way it can happen:
Think of a cough as a type of spasm. When you cough, many muscles are involved, and a chain reaction begins. Over time one or more can become irritated, and begin to hurt. Then your body protectively tightens up to minimize the pain, pulling even more muscles into the reaction. And your mind begins to tell you to stay still because your body hurts, tightening muscles even more. Eventually, you can have pain in strange places. Or, in my case, pain EVERYWHERE.

Another is through inactivity, if you feel unwell, fatigued, etc, you move less. Or you park in your recliner, where your posture is less than ideal. You may hold your pone or tablet for long periods, and muscles can tighten up.

A third is if you are prescribed an antibiotic regimen. Many carry a warning that side effects can include muscle aches and pain. In your own body the most vulnerable muscles will ache first. For me it was my arthritic hands, followed by my back, followed by… until I was a miserable lump.

Do any of these describe your situation? If so, we can have a conversation about some ways to deal with it.

Sue
PS One more – sitting with my nebulizer mouthpiece clamped in my jaw can still tighten my neck and upper back, even though I now know how to prevent it!

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Some days I do cough more than others. I have always been very active and go to the gym at least 4 days a week (30 minutes on treadmill followed by 30 minutes of arms and some legs). I have not started the Big 3 because I was trying to get another opinion from NJH (the nurse is calling me Tuesday 3rd) and I feel certain she will tell me to go ahead and start treatment which I am not looking forward to after reading all the affects people are having. UGH! I have cavitary (1.2) so I want to keep it from getting larger.
I also wanted to ask you if or when I get an appointment at NJH can I put my neb ultra with Saline in carry-on? Just thinking ahead because I would be really be concerned if I had to check it in and my luggage got lost.

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I started the big 3 this past summer; no issues with them. Taking a probiotic every day is helpful.

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Also, have your heart checked. Upper and mid back pain (bra line) for women can be associated with heart trouble.

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