Migraine headache

Posted by mahmoood2003 @mahmoood2003, Dec 10, 2019

I had one patient had sever migraine attack for more than 5 years, become worse last year making all investigation , blood test all negative
Nowdays migraine more when eating bread, corn, some food
I tried most pain killers no benifit

@smithforreal

A migraine diary will show patterns. There are some online you can use. They track food, weather, time of the month, medications and are very helpful long term. Pain killers should be your last resort. Triptans? Do they help abort your migraine? What preventative are you on? Lots of people are having luck with the new once a month shots like Emgality or Emovig. Most importantly you need to get to a migraine specialist or at least a good neurologist. It is very rare that migraines have causes such as tumors, etc.., but it does happen. Get to a neurologist, get an mri, and let them get you on preventative. You will be glad you did.

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I have been to neurologist, migraine specialist and I still suffer from terrible migrains daly, evbery day of the month for the last 8 years non stop. I even went to Mayo Clinic and found no help there either. I am at my wits end ond need help, I see floating spots day and night, do not sleep well and have tried Emgality, amovig and even Botox without getting releif. Any help would be great.

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@jbarb Im so sorry about your migraines . I cant imagine what they are like . I do have a suggestion when you said about seeing spots have you seen a opthamalogist? I dont know if she /he could advice you but just a suggestion

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@jbarb

I have been to neurologist, migraine specialist and I still suffer from terrible migrains daly, evbery day of the month for the last 8 years non stop. I even went to Mayo Clinic and found no help there either. I am at my wits end ond need help, I see floating spots day and night, do not sleep well and have tried Emgality, amovig and even Botox without getting releif. Any help would be great.

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Hi @jbarb.. I'm so sorry to hear of your migraine struggles. They are miserable and debilitating to deal with. I've gotten relief from botox every 3 months ( but it took 2 rounds to produce). Aimovig and Emgality both did their job but after 8+ months they each became less effective. To that, my neurologist says, then we keep rotating once you build tolerance. I'm now using Ajovy which are 3 needles once every 90 days. I'm back on track…til the next time. Also, my Neuro suggested Cambia, a powdered abortive medicine, mixed with water, taken upon onset of severe migraine. It is a game changer!

My only other advice is about clear diagnosis. I was also diagnosed with occipital neuralgia which led me to greater and lesser occipital nerve blocks in my head which then turned into several radio frequency ablations to kill the nerves.

I also have Small Fiber poly neuropathy. It is whole body but is predominant in my head, neck and shoulders so, that all presents mitigating factors for me.

Some days I don't know if I'm coming or going! Trying to navigate the root of pain and cause can be a challenge. No more injections/RFA's for me as I don't believe they helped my cause and perhaps contributed to permanent nerve damage.

Hoping to have helped you in some small way. May you find answers and relief soon. Be well –
Rachel

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My Son has had a migraine for 9 days at 9/10 pain, decreasing at times, after ibuprofen, Tylenol w/codeine and maxalt to 4-6/10 but only briefly. It has now been 2-3/10 for 3 additional days (12 total) after a steroid injection in urgent care day 9. I want to reach out to this community for some advice. I am an RN and have been very concerned about the lack of treatment he has received, feeling they are not taking it seriously. He is not a complainer and never goes to the doctor. From the 4th-9th days he was seen in ER (they did do a CT), urgent care and 2 phone appts. He called Friday (Day 10) to tell them he was out of migraine medicine. They made him a pcp appt for Tuesday for days later which would be day 14 if it continues. They said the doctor would return his call and he was going to ask for a neurology consult and MRA but she never called back on a Friday and never filled the migraine medication. They initially said it’s probably a virus, then said maybe a migraine but no other diagnosis or testing and it’s still present. He has had neck pain for the last few days but is able to put his chin to his chest. He has had no other symptoms except some body aches during the middle which is unclear if it was from laying in bed for a week Please help! We need some answers and someone to listen. Thank you!
Colleen

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@cxcolleen

My Son has had a migraine for 9 days at 9/10 pain, decreasing at times, after ibuprofen, Tylenol w/codeine and maxalt to 4-6/10 but only briefly. It has now been 2-3/10 for 3 additional days (12 total) after a steroid injection in urgent care day 9. I want to reach out to this community for some advice. I am an RN and have been very concerned about the lack of treatment he has received, feeling they are not taking it seriously. He is not a complainer and never goes to the doctor. From the 4th-9th days he was seen in ER (they did do a CT), urgent care and 2 phone appts. He called Friday (Day 10) to tell them he was out of migraine medicine. They made him a pcp appt for Tuesday for days later which would be day 14 if it continues. They said the doctor would return his call and he was going to ask for a neurology consult and MRA but she never called back on a Friday and never filled the migraine medication. They initially said it’s probably a virus, then said maybe a migraine but no other diagnosis or testing and it’s still present. He has had neck pain for the last few days but is able to put his chin to his chest. He has had no other symptoms except some body aches during the middle which is unclear if it was from laying in bed for a week Please help! We need some answers and someone to listen. Thank you!
Colleen

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Hi @cxcolleen, welcome to Mayo Clinic Connect. You may have noticed that I moved your message to this existing discussion about migraine headaches. I did this to connect you with fellow members like @courtneyblair @rwinney @russy and others who also manage migraines.

Colleen, do you feel like the migraine is a symptom of something else neurological going on?

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@cxcolleen I'm sorry to hear of your son's migraine status. There are cervicogenic migraines which stem from the neck, among many other kinds. I'm curious his age? Was he given a steroid taper pack or just a one time shot at urgent care? What is the migraine medication he is out of and was it helping? Does he have his own PCP to oversee his care and refer him to a neurologist? It seems like the ball has been dropped at his expense.

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