@rwinney thank you so much for your reply! So sorry to hear about the additional diagnosis.
I did message my neurologist about the flair after Botox but when his MA responded today, she didn’t address it. I’ll ask again. Since the Botox (Tuesday 3/8), I’ve had a pretty bad headache, although I have headaches every day, it did elevate after the injections. I’m pretty certain because of the injections although that seems odd since it’s supposed to help headaches. That evening, the widespread pain elevated pretty significantly. The following day the widespread pain continued. It’s the kind that just buzzes through the whole body, aching, thighs burning, feet and hands tingling and aching. It’s slightly better today although the elevated headache persists. I have SFN and autonomic neuropathy, also fibromyalgia because of the neuropathy. I’ve tried Emgality for headaches and it didn’t touch them. I’m fairly newly diagnosed with neuropathy/fibro (less than 6 months) and we’re still trying to find the best way to treat the symptoms since it’s considered idiopathic. I have an appointment request in with Mayo neurology and have been approved for triage, to get another opinion on treatment ideas. Thanks again for the reply and for hearing me out 🙂