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MGUS and restless leg syndrome

Posted by roseyd @roseyd, Jun 5, 2023

Was diagnosed with MGUS 2 yrs ago after surgery on my back, I am being followed by oncologist. I suffer from fatigue and bruising. For the last few months I am having severe leg cramps. Dr put me on Gabapentin which helped in the beginning but the only thing that helps now is a heating pad. I saw comments in this group before re: restless leg
syndrome. I’m looking for any recommendations on what works for you. This is happening nightly and cramping is more severe.

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arti4 | @arti4 | Jun 9, 2023
In reply to @mortysdad "Hi Arti4, I was experiencing allot of bad itching before my Et/Jak2 diagnosis and my dermatologist..." + (show)
@mortysdad

Hi Arti4,
I was experiencing allot of bad itching before my Et/Jak2 diagnosis and my dermatologist called it Puritis (we were unaware of anything deeper) and prescribed Gabapentin which my wife also has taken for her neuropathy from chemo. It actually worked well and a side benefit was my restless leg syndrome that would keep me up many a night diminished. Now that my itching is under more control seemingly from my Interferon therapy, the RLS comes back about once a week. I take a Gabapentin am hour before bed time and it helps relieve the numbing restlessness and I can sleep. Of course our bodies are all different and very complicated so while this seems to be beneficial in my case, may not be for others, but just wanted to share my experience in case there's a thread of hope for a fellow sufferer out there. May be worthwhile to run it by your Dr's. Blessings all!

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@mortysdad
Thank you for that. Haven’t tried Gabapentin. Definitely worth mentioning to Dr.

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arti4 | @arti4 | Jun 9, 2023

@loribmt, @mortysdad, @harley23, et al
So grateful for this site and all the helpful info. And just knowing there are others dealing with the same issues.. Blessings to all.

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1 reply
deb1955 | @deb1955 | Jun 9, 2023

i am sorry you have restless leg syndrome i have had it since i was 13 years old. i am 68 now the only thing that has helped me is ropinirole 0.5mg 2 at night if it wasn't the medicine that helps i would never sleep RLS is terrible.

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1 reply
harley23 | @harley23 | Jun 9, 2023
In reply to @loribmt "You might want to try Magnesium Glycinate. Much kinder on the guts and easily absorbed in..." + (show)
@loribmt

You might want to try Magnesium Glycinate. Much kinder on the guts and easily absorbed in the system.
I buy Pure Encapsulations brand. I had to take large amounts of Mag after my bone marrow transplant. One of the meds I was on would deplete it from my system quickly. Other forms of magnesium really messed up my tummy and caused nasty surprises. 😳 So I checked with my team pharmacist and he okayed the Mag Glycinate. 4 years later, I still take 1 capsule daily by choice. I sleep well and it appears to be helping with bone density along with vit D and calcium supplements. My husband had restless leg syndrome and finally took my nagging suggestion to “Just give it a try!” and now he’s a daily user. It did help him. I hope you find relief.

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Great tip. Thank you.

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roseyd | @roseyd | Jun 9, 2023
In reply to @deb1955 "i am sorry you have restless leg syndrome i have had it since i was 13..." + (show)
@deb1955

i am sorry you have restless leg syndrome i have had it since i was 13 years old. i am 68 now the only thing that has helped me is ropinirole 0.5mg 2 at night if it wasn't the medicine that helps i would never sleep RLS is terrible.

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Thanks for the info. I will discuss with my Dr.

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roseyd | @roseyd | Jun 9, 2023
In reply to @arti4 "@loribmt, @mortysdad, @harley23, et al So grateful for this site and all the helpful info. And..." + (show)
@arti4

@loribmt, @mortysdad, @harley23, et al
So grateful for this site and all the helpful info. And just knowing there are others dealing with the same issues.. Blessings to all.

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I agree. So many caring people. Thank you all for your comments. I see my Dr next week and will discuss all this info you all provided.

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