Metastatic bone cancer with unknown primary: Anyone else?

Posted by christinaclc @christinaclc, Oct 21 5:30pm

I have metastatic bone cancer with unknown primary. No symptoms for over 6 months then my arm broke on a lesion and I am now receiving chemotherapy and radiation. Please help me

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Profile picture for coco46 @coco46

@susan38 Are the anti nausea tablets helping now? If not be sure and tell them, because there are a few different ones they can try if one is not working for you.

When I had proton beam radiation for my spine, it pretty much hit everything in my bowels. I was so sick from it for months after, with a total loss of appetite, nausea and diarrhea. I actually ended up doing better with an over the counter vs the prescribed pills, plain old short acting dramamine helped me best. I would take it shortly before meals and was able to keep the food down. It made me very tired but I would rather be tired and sleeping, than feeling nauseas and throwing up.

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@coco46

Thank you. I too, would rather sleep than the sharp piecing uncontrollable spasm in my stomach coupled with the feeling of wanting to vomit and the nausea.
I feel so guilty wanting to sleep and it seems so lazy that I have no energy or enthusiasm.
Occasionally I’m thinking is this all I have to look forward too? I will try alternatives.

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Profile picture for susan38 @susan38

@coco46

Thank you. I too, would rather sleep than the sharp piecing uncontrollable spasm in my stomach coupled with the feeling of wanting to vomit and the nausea.
I feel so guilty wanting to sleep and it seems so lazy that I have no energy or enthusiasm.
Occasionally I’m thinking is this all I have to look forward too? I will try alternatives.

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@susan38 I know, I am always thinking and feeling that way too. Every situation is different, so I hope and pray you will still be able to get to a place where things are better. Certainly once you get through the active phase of chemo you will get past most if not all of the bad things that come along with that part of it. A lot of people do reach a point in their journey where they feel a lot better and have no regret of treatment. Also remember there is no guilt in sleeping while you are going through all this. Resting is actually very important while your body is trying to fight and heal.

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Profile picture for coco46 @coco46

@susan38 I know, I am always thinking and feeling that way too. Every situation is different, so I hope and pray you will still be able to get to a place where things are better. Certainly once you get through the active phase of chemo you will get past most if not all of the bad things that come along with that part of it. A lot of people do reach a point in their journey where they feel a lot better and have no regret of treatment. Also remember there is no guilt in sleeping while you are going through all this. Resting is actually very important while your body is trying to fight and heal.

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@coco46
Thank you.

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