Metallosis patients / heavy metal poisoning specialist

Posted by Hurkey @hurkey, Jul 17, 2024

To those of you who have experienced metallosis, did you seek out a heavy metal poisoning specialist to help you through? Or did your ortho know the procedure to follow?

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Profile picture for tom1536 @tom1536

I became aware of the effects of metalosis through my wife. My ortho never brought it up. My PCP was aware of it and the doctor my wife was seeing for chelation. To be honest, I didn't heed my wife's advice to have chelation until I began to read many of the related posts on this forum. Thank you all for sharing.

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Does ANYBODY know someone that has come back from the effects of metallosis…..normal or close to normal?

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Profile picture for tom1536 @tom1536

As I mentioned on a previous post, my implant shattered. Most of the pieces were removed; however a couple are too close to critical nerves for my surgeon to risk taking them out, also, my humerus had to be cut 7.5 inches and pryed open to remove the stem from my prior revision. Any time bones are broken, there's a risk of toxins being released. I won't know the full extent of my metalosis until my blood and stool tests come back.

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Have you looked into taking NAC supplement? I know it sounds trivial due to the seriousness of your issues but it has lowered my metal levels Substantially in 4 months. Wishing you the best.

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Thank you for your suggestion. My wife takes NAC and a couple of other supplements. We also take DMSA a couple of times a week. Pending the outcome of my tests, I may take NAC.

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Profile picture for tom1536 @tom1536

Thank you for your suggestion. My wife takes NAC and a couple of other supplements. We also take DMSA a couple of times a week. Pending the outcome of my tests, I may take NAC.

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DMSA (dimercaptosuccinic acid) is not a chelating agent for cobalt, chromium, nickel or titanium, which are the substances of concern in metal on metal joint replacements or metal sensitivities related to joint replacement. It's primary use is for lead, mercury and copper poisoning.
https://pubs.acs.org/doi/abs/10.1021/acs.chemrestox.2c00129
Please keep in mind that chelation is not a substitute for removing the metal in patients who are candidates for surgical revision. Metal ions will continue to shed, finding their way into tissues, blood, and organs like the liver. Most studies show chelation is most effective at removing metal from the blood, and somewhat effective in the liver. But metal ions in tissue will continue to do damage. A good revision surgeon cleans out the damaged tissue. In my case, the surgeon likened it to removing "lumpy gray oatmeal" from the area along the bone and muscle in my thighs. There is still somewhat of a dip in that area 14 years later - not all the tissue regrew.

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Profile picture for Sue, Volunteer Mentor @sueinmn

DMSA (dimercaptosuccinic acid) is not a chelating agent for cobalt, chromium, nickel or titanium, which are the substances of concern in metal on metal joint replacements or metal sensitivities related to joint replacement. It's primary use is for lead, mercury and copper poisoning.
https://pubs.acs.org/doi/abs/10.1021/acs.chemrestox.2c00129
Please keep in mind that chelation is not a substitute for removing the metal in patients who are candidates for surgical revision. Metal ions will continue to shed, finding their way into tissues, blood, and organs like the liver. Most studies show chelation is most effective at removing metal from the blood, and somewhat effective in the liver. But metal ions in tissue will continue to do damage. A good revision surgeon cleans out the damaged tissue. In my case, the surgeon likened it to removing "lumpy gray oatmeal" from the area along the bone and muscle in my thighs. There is still somewhat of a dip in that area 14 years later - not all the tissue regrew.

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Thank you Sue. I will discuss this with my chelation doctor. My wife does have arsenic and mercury in her system. I'm anxious to see what my test results reveal.

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Profile picture for Sue, Volunteer Mentor @sueinmn

DMSA (dimercaptosuccinic acid) is not a chelating agent for cobalt, chromium, nickel or titanium, which are the substances of concern in metal on metal joint replacements or metal sensitivities related to joint replacement. It's primary use is for lead, mercury and copper poisoning.
https://pubs.acs.org/doi/abs/10.1021/acs.chemrestox.2c00129
Please keep in mind that chelation is not a substitute for removing the metal in patients who are candidates for surgical revision. Metal ions will continue to shed, finding their way into tissues, blood, and organs like the liver. Most studies show chelation is most effective at removing metal from the blood, and somewhat effective in the liver. But metal ions in tissue will continue to do damage. A good revision surgeon cleans out the damaged tissue. In my case, the surgeon likened it to removing "lumpy gray oatmeal" from the area along the bone and muscle in my thighs. There is still somewhat of a dip in that area 14 years later - not all the tissue regrew.

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How does one FIND a board certified orthopedic surgeon that has metalosis knowledge AND revisions? TIA ⚘️

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Profile picture for bdwmc @bdwmc

How does one FIND a board certified orthopedic surgeon that has metalosis knowledge AND revisions? TIA ⚘️

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I don't think metalossis knowledge is critical unless it persists after revision, which is highly unusual. The way I found the right one was to call our largest ortho practice and ask for the names of the docs who did the most revisions, then looked up their online profiles. I found a doc who was rated as one of the best surgeons in my metro area, and am still seeing him 14 years later for all ortho issues.

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Profile picture for Sue, Volunteer Mentor @sueinmn

I don't think metalossis knowledge is critical unless it persists after revision, which is highly unusual. The way I found the right one was to call our largest ortho practice and ask for the names of the docs who did the most revisions, then looked up their online profiles. I found a doc who was rated as one of the best surgeons in my metro area, and am still seeing him 14 years later for all ortho issues.

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So was it a teaching orthopedic hospital you asked for a revision surgeons? May I ask where you are located? Thanks so much.

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Profile picture for bdwmc @bdwmc

So was it a teaching orthopedic hospital you asked for a revision surgeons? May I ask where you are located? Thanks so much.

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I asked at the highly respected Orthopedic group near my home, then checked the credentials of the doctors recommended to me. I knew this group from a prior ACL/MCL knee surgery and had a great experience with them. I am in Minnepaolis, Minnesota

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Profile picture for Sue, Volunteer Mentor @sueinmn

I asked at the highly respected Orthopedic group near my home, then checked the credentials of the doctors recommended to me. I knew this group from a prior ACL/MCL knee surgery and had a great experience with them. I am in Minnepaolis, Minnesota

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Thank you. I googled large highly rated orthopedic centers near Seattle, we have quite a few, two of which I have consults with surgeons in.

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