Tentorial Meningioma Brain Tumor

Posted by Elaine R. @mrser52, Dec 27, 2017

Dose any one know what is a anteromedial tentorial meningioma is?

@oldkarl

@farah Hi, again. Welll, I think that is a question for a doctor, but I do know a couple men who have had bones broken in the top of their skull by war, and the bones grew back in both of them. It took a good while, but with a good diet and tender care, they grew the bones back. Sadly, both brains were injured, but the men both survived into their 60s.

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Well thank very much for your time and replies and I really appreciate it.

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Hi guys. I just went to er. Have been having weakness in arms and trouble finding the right words for sentences. My doc seems tobthink it is time to operate on my left shenoid wing meningioma again. Concerned because the sent me home with home care papers for Malignant primary brain tumor. Up until mow they said it was benign. Said I should have surgery as soon as possible. Already had one but it was transphenoidal. Now saying craniotomy. Not really knowing what to expect with that one. Really freaked me out yesteeday when I couldn’t talk right.

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@cnesselroad

Hi guys. I just went to er. Have been having weakness in arms and trouble finding the right words for sentences. My doc seems tobthink it is time to operate on my left shenoid wing meningioma again. Concerned because the sent me home with home care papers for Malignant primary brain tumor. Up until mow they said it was benign. Said I should have surgery as soon as possible. Already had one but it was transphenoidal. Now saying craniotomy. Not really knowing what to expect with that one. Really freaked me out yesteeday when I couldn’t talk right.

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I tink it must have been a mistake for at home care papers. Right? They said it didn’t grow much just allot of headaches, shaking,fatigue,heavy arms and now speech.

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@cnesselroad

Hi guys. I just went to er. Have been having weakness in arms and trouble finding the right words for sentences. My doc seems tobthink it is time to operate on my left shenoid wing meningioma again. Concerned because the sent me home with home care papers for Malignant primary brain tumor. Up until mow they said it was benign. Said I should have surgery as soon as possible. Already had one but it was transphenoidal. Now saying craniotomy. Not really knowing what to expect with that one. Really freaked me out yesteeday when I couldn’t talk right.

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@cnesselroad, how frightening this must be. It might be an error in the home care papers. Error do happen, which is why it is so important to always get copies of your records, tests etc or access through a patient portal. Did you call your doctor to find out?

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@colleenyoung

Tentorial meningiomas represent about 5% of intracranial meningiomas. Tentorial meningiomas are rare tumors located along the surface of the tentorium cerebella in the brain. These types of posterior fossa meningiomas can cause headaches, seizures, and difficulty walking. (Reference http://www.mountsinai.org/care/neurosurgery/services/meningiomas/types)
Anteromedial refers to the location, namely in front and toward the middle.

Mrser, has your diagnosis been established as a tentorial meningioma?

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It has been 6 weeks since I had my SRS treatments for my Tentorial Meningioma. And I have no idea if feeling pressure in my eye and forehead if normal. Has anyone had this happen to you?

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I would like to know what other people are going threw with their Tentorial Meningioma and how they are doing.

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Hello @mrser52, I merged you discussion about finding others with tentorial meningioma in to you previous discussion started on Tentorial Meningioma Brain Tumor so that you could reconnect with the members who joined that discussion. You mentioned that you were feeling pressure in your eye and forehead a few days ago, has that got any better?

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@JustinMcClanahan

Hello @mrser52, I merged you discussion about finding others with tentorial meningioma in to you previous discussion started on Tentorial Meningioma Brain Tumor so that you could reconnect with the members who joined that discussion. You mentioned that you were feeling pressure in your eye and forehead a few days ago, has that got any better?

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no I still have it.

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I am so depressed with all of the nerve pain and pressure in my right eye and forehead. I don't know how much longer I can deal with this. I just feel like giving up. I feel like there is no end of all of this.

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Hi Elaine @mrser52,

I'm so sorry hear that you are feeling so low, but I also want to thank you for reaching out and leaning on this community, because it tells me, and other Connect members how resilient you are! Everyone experiences things in different ways, but I'm certain that, at some point, you will connect with someone here, who has gone or is going through much of what you are experiencing.

Intracranial pressure tends to be higher from lying in bed for a few hours, as when you sleep; do you feel the headaches are more intense when you wake up in the morning? Have you talked to your doctor about the headaches worsening?

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@kanaazpereira

Hi Elaine @mrser52,

I'm so sorry hear that you are feeling so low, but I also want to thank you for reaching out and leaning on this community, because it tells me, and other Connect members how resilient you are! Everyone experiences things in different ways, but I'm certain that, at some point, you will connect with someone here, who has gone or is going through much of what you are experiencing.

Intracranial pressure tends to be higher from lying in bed for a few hours, as when you sleep; do you feel the headaches are more intense when you wake up in the morning? Have you talked to your doctor about the headaches worsening?

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Yes I have, I don't have this when I wake up in the mornings. It happens during the day. And my doctor won't give me an answer why this is happening to me. This is why I am so depressed and why I just want to give up. It is so hard to deal with not knowing if this is normal, to be happening during the day.

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@kanaazpereira

Hi Elaine @mrser52,

I'm so sorry hear that you are feeling so low, but I also want to thank you for reaching out and leaning on this community, because it tells me, and other Connect members how resilient you are! Everyone experiences things in different ways, but I'm certain that, at some point, you will connect with someone here, who has gone or is going through much of what you are experiencing.

Intracranial pressure tends to be higher from lying in bed for a few hours, as when you sleep; do you feel the headaches are more intense when you wake up in the morning? Have you talked to your doctor about the headaches worsening?

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I want to Thank You, you really helped me when you mention intracranial pressure. At least I know that this might be why I feel the pressure behind my right eye and in my forehead. Tomorrow I have a MRI, and once that is done I hope all of my depression and thoughts of hurting myself goes away. Thank You again.

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@colleenyoung

Tentorial meningiomas represent about 5% of intracranial meningiomas. Tentorial meningiomas are rare tumors located along the surface of the tentorium cerebella in the brain. These types of posterior fossa meningiomas can cause headaches, seizures, and difficulty walking. (Reference http://www.mountsinai.org/care/neurosurgery/services/meningiomas/types)
Anteromedial refers to the location, namely in front and toward the middle.

Mrser, has your diagnosis been established as a tentorial meningioma?

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I have been diagnosed with a 5mm left tentorial leaflet menginoma, I've already got a 6mm frontal menginoma since 2011, I've had no issue that I know of from the 1st one. But a month or 2 before I had this last MRI that found the new tentorial menginoma. My doctor said this is nothing to worry about, but he knows I wake with a headache every morning and the worst part is my eyes burn horrible. Is this part of either or 1 of ylthe menginomas possible?

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@jamie9

I have been diagnosed with a 5mm left tentorial leaflet menginoma, I've already got a 6mm frontal menginoma since 2011, I've had no issue that I know of from the 1st one. But a month or 2 before I had this last MRI that found the new tentorial menginoma. My doctor said this is nothing to worry about, but he knows I wake with a headache every morning and the worst part is my eyes burn horrible. Is this part of either or 1 of ylthe menginomas possible?

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@jamie9, welcome to Connect. @mrser52 will appreciate connecting with someone else who also has tentorial menginoma. Elaine also mentions problems, not a burning as such, but rather pressure behind her eye and forehead.

Jamie, I can't imagine the burning sensation. Is this actually in your eyes that you feel the burning or behind the eyes? Is your doctor considering surgery or treatment of some kind?

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@colleenyoung

@jamie9, welcome to Connect. @mrser52 will appreciate connecting with someone else who also has tentorial menginoma. Elaine also mentions problems, not a burning as such, but rather pressure behind her eye and forehead.

Jamie, I can't imagine the burning sensation. Is this actually in your eyes that you feel the burning or behind the eyes? Is your doctor considering surgery or treatment of some kind?

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I see my neurosurgeon tomorrow I plan on visiting with him about all this.the burning does feel like it's my eyes an they are not bloodshot, it's so odd an makes reading difficult, I'll let you know.
Thank you

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