Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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jasonl1012 | @jasonl1012 | 1 day ago

In reply to @crowley53 "@jasonl1012 I had a molded mesh face mask." + (show)

@crowley53
What type of radiation did you have?

crowley53 | @crowley53 | 1 day ago

In reply to @jasonl1012 "@crowley53 What type of radiation did you have?" + (show)

@jasonl1012 , Gamma knife

Colleen Young, Connect Director | @colleenyoung | 1 day ago

In reply to @griffin84 "@poofy I was just diagnosed as well and haven’t gotten in to the Dr yet. I..." + (show)

@griffin84, have you met with your doctor in the meantime? What did you find out? How are you doing?

jasonl1012 | @jasonl1012 | 19 hours ago

In reply to @crowley53 "@jasonl1012 , Gamma knife" + (show)

@crowley53
Thank you for the info. Did it stop the growth? How many sessions, and how did you feel? If you don’t mind me asking. Sorry for all the questions, I’m a bit nervous

pippa999 | @pippa999 | 17 hours ago

Just symptoms of imbalance giddyness ...feeling drained ...dry mouth...weak limbs...no headaches..vision perfect.

lisaj63 | @lisaj63 | 17 hours ago

In reply to @randallshields56 "@randallshields56 wasn't trying to scare you or anything about the prayer groups thing, i believe in..." + (show)

@randallshields56 Amen, Amen & Amen! I too believe in prayer so the first thing I did upon getting the dx is pray and call on
my. prayer warriors! I truly believe God is in control!

crowley53 | @crowley53 | 11 hours ago

In reply to @jasonl1012 "@crowley53 Thank you for the info. Did it stop the growth? How many sessions, and how..." + (show)

@jasonl1012, I have my MRI in March and I find out then.

crowley53 | @crowley53 | 11 hours ago

In reply to @jasonl1012 "@crowley53 Thank you for the info. Did it stop the growth? How many sessions, and how..." + (show)

@jasonl1012 , Ask away. I don't mind. I had 5 treatments and from start to end about 45 mins. I requested a mild sedation. Between the MRI'S and Radiation I can't stand being locked down any more. Sedation for the Radiation was a big help. I 'll find out in March if it helps for the MRI'S.

crowley53 | @crowley53 | 11 hours ago

In reply to @jasonl1012 "@crowley53 Thank you for the info. Did it stop the growth? How many sessions, and how..." + (show)

@jasonl1012 , I'm very tired. I have great days. Yesterday I packed up almost the entire yard for winter. Today I needed fun. So, I went shopping and checked out Christmas deco. I don't need any more but I did get a few things. Remember to be good to your self. Go do something you enjoy. All this other stuff will still be there.

Maryann | @mkoch | 9 hours ago

In reply to @jasonl1012 "@crowley53 Did they have to bolt a halo on your head? I don’t want that done..." + (show)

@jasonl1012: Down the road I may have to have radiation on one, or both, of 2 remaining meningiomas. I found this article regarding cyber knife versus gamma knife a few years back when I was trying to decide between surgery or radiation for the optic nerve meningioma I did have removed. I thought I'd post in case you, or anyone else, may be interested.
https://www.summitcancercenters.com/cyberknife-vs-gamma-knife/