Meningioma
I was diagnosed with Meningioma and I don't understand it. I have a lot of the symptoms of Meningioma. What do I need to know??
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I was diagnosed with Meningioma and I don't understand it. I have a lot of the symptoms of Meningioma. What do I need to know??
Interested in more discussions like this? Go to the Brain Tumor Support Group.
It seems like you could benefit from checking the ABTA website( America Brain Tumor Association) They have educational resources and even a care line you can call. Its a pretty easy website and helped me very much when first diagnosed. Hope this helps. 🫂
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1 ReactionMiracle child: My meningioma was found incidentally when I was being scanned for something else. My primary care physician said, "You have a meningioma." Basically, end of story. I, like you, didn't understand what it was, what impacts it would have. At the very least you should be seen by a neurologist. He/she should be able to give you a lot of information and may decide to refer you to a neurosurgeon, who is actually the expert on meningiomas and if they should be left alone, radiated, or removed. My advice is don't settle for what advice your primary care doctor suggests. I was steered in the wrong direction by mine.
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5 ReactionsMy diagnosis came as a surprise from a scan done for other reasons. Even as an RN I had much to learn. I had consults at 2 medical centers with 4 doctors, 1 neurologist and 3 neurosurgeons. I had to educate myself about meningiomas in general and then take in the info from the specialists who each had some differing insights and recommendations about my specific tumor. I also read online reputable sources and joined this forum. From all that I found the place I want to be followed as a patient and I was able to choose the physicians I want to continue with. I was so anxious in the beginning but after my situation became better understood I felt so much better. I wish you the best and remember to take good care of yourself.