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Just diagnosed with Meningioma: What do I need to know?
Brain Tumor | Last Active: Mar 23 11:59am | Replies (27)Comment receiving replies
Six months ago, I was diagnosed with a grade 1 meningioma. A neurosurgeon from Sutter Health performed my surgery to remove it. The tumor was the size of a golf ball and calcified. Although I didn't have a chance to vet the neurosurgeon's expertise beforehand, he successfully removed the entire tumor, and I am now on the road to recovery. I am experiencing some minor tightness and occasional headaches, but overall feel confident in my progress.
During the surgery, a second small mass was discovered along the posterior falx, which is the sheet dividing the brain. This mass is deep, and if treatment becomes necessary in the future, it will likely involve radiosurgery. I have been referred to a surgeon at Stanford Health Care who has experience with a clinical trial relevant to my case, allowing me to effectively evaluate my options moving forward.
Replies to "Six months ago, I was diagnosed with a grade 1 meningioma. A neurosurgeon from Sutter Health..."
@mjlc25
A very concise and optimistic report. Congratulations!
Dolly
@mjlc25 what was the surgeons name? Wachorst? He refused to see me said he doesn’t do meningioma (2.7 cm left frontal lobe partially calcified)
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@mjlc25: I am glad to hear your craniotomy was a success. I also have an 8mm meningioma along the posterior falx that I am monitoring with yearly MRIs. I am assuming that it was your neurosurgeon who suggested , "it will likely involve radiosurgery." I take that to mean that you would be a candidate for either gamma knife or cyber knife. If and when it is recommended that I undergo radiosurgery, I'd rather veer in the direction of a tried and true procedure rather than be part of a clinical trial. Is there is something unique about your meningioma that leads the neurosurgeon to think the traditional radiosurgery isn't a good approach? Just wondering because I'm kind of in the same situation.