Just diagnosed with Meningioma: What do I need to know?

Posted by miraclechild @miraclechild, Feb 1 2:50am

I was diagnosed with Meningioma and I don't understand it. I have a lot of the symptoms of Meningioma. What do I need to know??

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dailygift | @dailygift | 3 days ago

In reply to @jimw9 "@dailygift Do not ignore any increase with your edema." + (show)

@jimw9 have you had experience with associated edema?

mjlc25 | @mjlc25 | 2 days ago

In reply to @as72 "@mjlc25 what was the surgeons name? Wachorst? He refused to see me said he doesn’t do..." + (show)

@as72
Dr Margaret Hayden from Stanford Neurosurgery Cancer Department.
Look her up and read her bio.
My meeting with her was pleasant and satisfying.
Hope your visit is too.
Good luck!

as72 | @as72 | 2 days ago

In reply to @mjlc25 "@as72 Dr Margaret Hayden from Stanford Neurosurgery Cancer Department. Look her up and read her bio...." + (show)

@mjlc25
Will you be having yours removed? I met with her as well and liked her. I also consulted with Dr Aghi at UCSF Neurology as I’ve heard they are #2 in the country. I think Stanford is #12. I have second MRI scheduled Tuesday with follow up April 2. I just want this tumor out of my head! Not sure what is more frightening having craniotomy or walking around with this tumor in my head!!!

mjlc25 | @mjlc25 | 1 day ago

In reply to @as72 "@mjlc25 Will you be having yours removed? I met with her as well and liked her...." + (show)

@as72
Patient experiences may vary. What matters most is how you feel—both physically and psychologically—about proceeding with tumor removal and whether you feel safe in that decision. Any invasive surgery, especially involving the brain, carries inherent risks. Prioritizing your well-being is essential, and taking care of yourself through healthy habits, including proper nutrition and lifestyle, also plays an important role. Hope this helps.

mjlc25 | @mjlc25 | 1 day ago

In reply to @vernicek "@mjlc25 I was diagnosed with skull based meningioma on the left side on Feb 7, 2026..." + (show)

@vernicek
I apologize for the delayed reply—I just saw your message.

The consultation with the new neurosurgeon went very well and was a positive experience. She was transparent about the pros and cons of radiosurgery, if it becomes necessary. She also reviewed my MRI images in detail and walked me through different views of my brain.

I have a follow-up MRI scheduled for later in the third quarter of the year.

I hope this answers your question.

vernicek | @vernicek | 1 day ago

In reply to @mjlc25 "@vernicek I apologize for the delayed reply—I just saw your message. The consultation with the new..." + (show)

@mjlc25

Thank you for the follow up. I met with Dr. Shahlaie at the UC Davis Medical Center on Wednesday. He will definitely be the one who guides me through this journey on a conservative path of two MRI’s and visits in the next 12 months. If my vision stays unaffected and there are no other symptoms, MRI’s and eye exams will go to once a year. For now, I will continue with my regular busy life knowing I’m in good hands.

doyel | @doyel | 11 hours ago

I was diagnosed in December of 2025 saw neurosurgeon in January. He advised I watch and wait. Scheduled for MRI in June. Doing OK but It is always on your mind just realized how silly that sounds after I typed it 🙃 Keep positive. Forgot to mention I'm 79 years old and I also have ITP (low plattlet count) but I continue to be active.