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Meningioma: Getting ready for radiation, any tips or advice?

Posted by pabw @pabw, Mar 7 12:50pm

My grade 2 meningioma, "Bengio") was surgically removed April of 2023. At my recent MRI, it showed that it is growing back. Since it isn't too big yet, they want to do radiation to stop it's growth. Anyone else experience this? If so, is there any advice or tips you can give me? I will have travel 2 1/2 hours for treatment. Thanks in advance!

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jasonl1012 | @jasonl1012 | Jun 2 9:23am
In reply to @mkoch "aabkitty1: At the time your petroclival meningioma was removed a few years back did the doctor..." + (show)
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aabkitty1: At the time your petroclival meningioma was removed a few years back did the doctor indicate that they were able to remove it all? I'm wondering if doctors are able to remove a tumor in its entirety, would the probability of a regrowth be less likely. In my own case, that is what I am hoping. The surgeon said they were able to remove all of it but then I read these posts about regrowths and get nervous.

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Quite often, depending on the area of the brain, they do have to leave “a cuff” of tissue around arteries or nerves. Even in the patients that state they had “complete excision” of the tumor they can regrow. The surgeons will always say no guarantee. I was told it’s a diagnosis that you will live with all your life, though many people thrive with full lives.

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