Members list: How do I become a member of a group?

Posted by jada @jada, Jul 4 7:43pm

I received a message to join the members group on Autoimmune diseases. I found the member list but no where to add my name to it. I know I’m probably sending this in the wrong place but this was the 1st place I found to be able to send a message. Thank you – Janet Pollard

Hello Janet @jada, Welcome to Mayo Clinic Connect. There is a great Get Started on Connect user guide that you can access from any Connect page by going to the bottom footer left column and clicking on the link. Here is the direct link to the guid – https://connect.mayoclinic.org/get-started-on-connect/

May I ask how you found Connect and what you were looking for? If you click the VIEW & REPLY button in the email message you receive, it will take you to my reply to your new discussion.

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I came across mayo clinic connect as it piped up on my cell phone. Beginning in1998 I became extremely fatigued. I would even come home from work at my lunchtime, set an alarm for 20 minutes, drive back to school. Leave school at 4:00 and back home on the couch until 7 pm and back to bed at 9:00 until 7 am in the morning. During the summer with school out, I would sleep on the average 14-16 hours. I was not diagnosed wit Sjögren’s until 2010. I begged my doctors, obgyn, cardiologist, primary care, Dermatologist, Ophthalmologist that put me on Restasis 8 years ago. I can’t seem to get answers from my Rheumatologist oI feel like a hypochondriac and I’m sure my husband gets tired Of me complaining. I just want to know more information of what to expect or not to expect so I’m not constantly complaining. I was at Mayo the first of the year with my cousin having some tests run since she had her spine fused and then having a mastectomy and a year later the 2nd mastectomy. Ive searched several website dealing with Sjögrens and I think I need to stay away them. The info I get is pretty scary. I prefer to get info from a reliable website. I hope I haven’t wasted your time.

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@jada

I came across mayo clinic connect as it piped up on my cell phone. Beginning in1998 I became extremely fatigued. I would even come home from work at my lunchtime, set an alarm for 20 minutes, drive back to school. Leave school at 4:00 and back home on the couch until 7 pm and back to bed at 9:00 until 7 am in the morning. During the summer with school out, I would sleep on the average 14-16 hours. I was not diagnosed wit Sjögren’s until 2010. I begged my doctors, obgyn, cardiologist, primary care, Dermatologist, Ophthalmologist that put me on Restasis 8 years ago. I can’t seem to get answers from my Rheumatologist oI feel like a hypochondriac and I’m sure my husband gets tired Of me complaining. I just want to know more information of what to expect or not to expect so I’m not constantly complaining. I was at Mayo the first of the year with my cousin having some tests run since she had her spine fused and then having a mastectomy and a year later the 2nd mastectomy. Ive searched several website dealing with Sjögrens and I think I need to stay away them. The info I get is pretty scary. I prefer to get info from a reliable website. I hope I haven’t wasted your time.

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Hi Janet @jada, You definitely are not wasting anyone's time! Connect is a patient to patient support site where you can meet other members with similar symptoms and learn what helps them. There is another discussion on Connect that you may want to join and read what has been shared. if you select Newest to Oldest at the top of the discussion below the description on the right side, you will see the most recent posts at the top.

Sjogren’s Syndrome – Introduce yourself and meet others: https://connect.mayoclinic.org/discussion/sjogrens/

Since you mentioned being extremely fatigued, you may also be interested in the following discussions.

> Groups > Just Want to Talk > Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments
https://connect.mayoclinic.org/discussion/myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments/

There is also another similar discussion that you might find interesting.
> Groups > Women's Health > Chronic Illnesses of Millions of Women Left Untreated
https://connect.mayoclinic.org/discussion/chronic-illnesses-of-millions-of-women-left-untreated/

Do you have any specific questions you are trying to get answered?

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Hi Janet @jada, I'd like you add my welcome.

First, to explain about becoming a member of a group on Mayo Clinic Connect. You have successfully followed the Autoimmune Diseases group. By following a group, you are added to the members list of that group. This means that you will receive notifications every time a new post is added to the group. You can choose to receive the notifications by email or on the website itself and get a daily digest of all the post made to the groups you follow.

To learn more about How to Follow a Group, see the Get Started on Connect instructions that @johnbishop shared with you. You can find them here: https://connect.mayoclinic.org/get-started-on-connect/

I hope you'll post a message and introduce yourself to the other members talking about Sjrogren's in this discussion:
Sjogren’s Syndrome – Introduce yourself and meet others: https://connect.mayoclinic.org/discussion/sjogrens/

We look forward to welcoming you there.

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I'm having the same problem! If you find out can you let me know? Maria.

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@mariajean03

I'm having the same problem! If you find out can you let me know? Maria.

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@mariajean03, here's how to add your name to the member list of any group on Mayo Clinic Connect:

1. Go to the Group Directory https://connect.mayoclinic.org/groups/
2. Click +Follow below each group you wish to follow and be a member of.
3. Select whether you'd like to receive an email notification for every new post or only a daily summary of post.
4. Click UPDATE and close the pop-up window.

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