MELD score goes up and down, does anyone else have this?

I've been on and off the waiting list for twelve years now with no transplant as of today. My MELD score doesn't stay stable long enough to remain on the waiting list for the last two years. It jumps between 20 to 8. Yesterday's labs show it's back to 8. I need several other surgeries once the transplant is healed but I just can't get there. My heptologist at Mayo called it MELD purgatory as I have all the crummy parts of needing a transplant without having one. I'd be glad it was low if I didn't need so many other issues fixed; degrading discs in my lumbar needs fusing, collapsed nasal passages needs balloon surgery, pinched nerve in my neck on going nerve studies to determine best way to correct, carpel tunnel release both wrists (second time) and shoulder correction. I'd like to get these fixed since my quality of life is in decline but I'm stuck with the low MELD. It's too low for any exception points to make a difference. Does anyone else have an irratic (or have had) MELD scores? I'm getting discourged and feel like ditching the whole thing.