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Melanoma & Skin Cancer support: Introduce yourself and connect
Welcome to the Melanoma & Skin Cancer support group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet others living with skin cancer or caring for someone with skin cancer, including melanoma, basal cell carcinoma (BCC) squamous cell carcinoma (SCC), dermatofibrosarcoma protuberans (DFSP), Merkel cell carcinoma, sebaceous carcinoma, and their treatments. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
Take these steps to participate in the group:
- Follow the group.
- Browse topics.
- Use the group search to find answers to your questions.
- Introduce yourself.
Pull up a chair and chat. Why not start by introducing yourself? What is your experience, or your loved one’s experience, living with melanoma or skin cancer (i.e., what type, how long since diagnosis, how it’s managed)?
Do you have a question, tip or story to share?
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I’m now in my second and final week of my 2 weeks on, one week off, and two weeks on applying Clobetasol to my EPD. For the first 2 weeks I finally decided to use Vaseline. After those 2 weeks the EPD lesions slid off my scalp, and when I went to my derma for a two week check he said I could go back to using my ketoconazole ant-fungal shampoo once again. The Clobetasol has worked wonders (so far), but EPD has a high chance of reoccurrence, so I closely monitor my scalp every day. If it pops on in another area, then the bottle of Clobetasol solution will be at the ready.
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1 Reaction@pamjm: I'm glad you found us as well! But I'm sorry to hear about what brought you here; that's a very rare and painful condition. Since you're looking to connect with others who share this, I'd like to suggest you start a separate post with that specific diagnosis of Erosive Pustular Dermatosis of the Scalp in the group Skin Health: https://connect.mayoclinic.org/group/skin-conditions/. EPDS is considered a skin condition so you may find people within that community. Providing your experience could be of tremendous help to others as you look to others as well.
@19sfca47: This is helpful information. I just suggested to @pamjm to consider starting a topic specifically on EPDS in the skin health group Skin Health: https://connect.mayoclinic.org/group/skin-conditions/ as others with this condition may be more likely to find it there rather than here amongst the melanoma and skin cancer groups. Your experiences could definitely benefit others!
@grammato3
EPDS is a fairly rare condition usually occurring in bald males over 70 years old who have had a history of sun induced skin cancer. Nonetheless, I would welcome a topic on it. I wake up every morning looking for signs of a new EPD break out. It’s a crazy way to live, but. . . .