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MAC Medication and long term side effects

Posted by debminuet @debminuet, Jun 22, 2020

Hi Everyone, I wonder if someone can inform me: I have just decreased an 18 month regime of daily big 3 to three times a week to keep away the bugs during covid. My question is to the suceptibility negative effects to the liver, the reduction in bone marrow, and other possible medical issues that can arise with chronicty of mac and on going meds? Does anyone who is without secondary medical issues have any experience of this?

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Jul 1, 2020
In reply to @derbeltal "I know I do not comment very often but follow the comments and have received valuable..." + (show)
@derbeltal

I know I do not comment very often but follow the comments and have received valuable answers. I have started the noise in my left ear. Cannot go to doctor as doctors in my area are doing televisits. This will not help as they will need to see me. My ID doctor said if I could continue until October, I will probably quit the meds as I have stayed the course even with all the side effects. I wonder if I will be ok since I only have 4 more months. Would love to hear from someone who has had this problem. Thank you so much. The comments from other MAC patients help so much.

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@derbetal Are you taking Azithromycin by any chance? That is a common one that can cause tinnitus. If you are on it, it can be substituted with Clarythromycin (if your suseptability test allows).

REPLY
derbeltal | @derbeltal | Jul 1, 2020

I am taking Azithromycin. Thank you so much. I have a visit with my ID doctor next week. Will ask him if I can switch. They are trying to keep me. . on the meds I am on as they think i can quit in October.

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tdrell | @tdrell | Jul 1, 2020
In reply to @windwalker "Hello Terri! You and I haven't chatted in awhile. How have you been doing? How are..." + (show)
@windwalker

Hello Terri! You and I haven't chatted in awhile. How have you been doing? How are you keeping busy during covid?

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@windwalker...terri....ironic...just sent you a private message to see how things are...after you made a comment on a response to another member.....things fine here.....our state went into lockdown a short while after l returned from sister's in Arizona....so that was good....health was good...no bronchitis for the first time in years....learned to use Zoom so stayed connected with a number of volunteer activities....well supplied with Toilet paper....two floors in house so hubby and I could each have own distance as needed....retired so ok with income....we are/were lucky....how about you and family??terri

REPLY
boomerexpert | @boomerexpert | Jul 1, 2020
In reply to @windwalker "Hello Terri! You and I haven't chatted in awhile. How have you been doing? How are..." + (show)
@windwalker

Hello Terri! You and I haven't chatted in awhile. How have you been doing? How are you keeping busy during covid?

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To which Terri are you speaking?

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