Mayo Clinic Connect
I'm just curious how many of you wear medic alerts since your transplants? I've talked with my husband about it but he's reluctant too wear anything. I think it's because he doesn't want to wear "jewelry".
Liked by Leonard Holloway, Rosemary, Volunteer Mentor, @tbirdmunchkin
I printed off a card that you can write your info. on , there are several online…mine was free but some of the nicer ones cost a bit.
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I wear a gold bracelet with insulin diabetic inscribed on it and it has the international insignia on it. I also have in my wallet a card that says I am on an insulin pump. You never know when wearing it could save my life.
Liked by Rosemary, Volunteer Mentor, @tbirdmunchkin, jodeej, Leonard Holloway
I have a blank medic alert bracelet that I carry with me unfortunately here in Eau Claire WI. It's hard to find someone to inscribe heart transplant patient on it as it's not silver or gold so if I am able to tell someone if something should happen I tell them I a heart transplant patient as for wearing the bracelet it is to big and falls off my hands and wrist are so tiny and I don't wear necklaces so the bracelet it is
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@glinda you can order them on Amazon and they will inscribe them before they ship them to you. If you order a necklace you can make the chain shorter and put it on your key chain. I think this may be the route we go with my husband along with the wallet card.
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I have been told that First Responders, the EMT's are trained to look for a medical alert tag on a bracelet or around the neck.
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My husband and I opted to get my medic alert bracelet thru the Medic Alert Foundation. There are many varieties and prices to choose from. I chose a silver one with a pretty silver bracelet chain. I wear it all the time. I could specify the engraving, and they do the engraving. I took it to my jeweler to shorten the chain. I have worn the same one for 9+ years, and it still looks like new.
I do pay an annual fee so that my health information, and Mayo Transplant connection, and especially any medication changes, can be easily updated by me. In an emergency, the medics need to know about our immunosuppressant meds to avoid any potentially harmful interactions.
It works for me, so I wanted to share. There might be other companies out there, too.
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@rosemarya I just ordered a necklace for my husband. I'm hoping that with a longer chain that he'll wear it since he can hide it under his shirt. If not, he can get a shorter chain and put it on his keys.
Liked by Rosemary, Volunteer Mentor, Leonard Holloway
I also have gotten necklaces and bracelets from the Medic Alert Foundation since I was 16. Yes, I pay an annual fee, but they will inscribe the jewelry and have my medical and family contact information available 24/7/365. I find it reassuring that this information is available if I am not conscious to provide it.
does anyone on this post know of anyone who is dealing with als? my husband was just diagnosed with it and I am at such a loss as to what to expect…..if anyone can help me, please let me know. jan
Liked by Leonard Holloway
@allegro, I want to share this information about Amyotrophic lateral sclerosis (ALS)
I want to direct you to the Neuropathy discussion Group. That would be a good place to visit. I encourage you to post your question there. https://connect.mayoclinic.org/group/neuropathy/tab/discussions/
Hi Jan @allegro — Mayo Clinic has some information on ALS here:
Amyotrophic lateral sclerosis (ALS)
Here are some Mayo Clinic YouTube videos that may be helpful:
Diagnosis and Treatment of ALS
New Technology to help patients with ALS
Hi Jan @allegro, there is an older discussion here where you might want to ask your question. Hopefully one of the members who posted is still receiving notifications.
Groups > Brain & Nervous System > ALS – Lou Gherig's Disease
@jodeej I do not wear any medic alert jewelry. It was never suggested to me and thinking about it, I figure if I was not conscious they would see that giant scar on my abdomen and figure that I had a transplant — either that or a shark bit me.
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@contentandwell if anyone asks, go with shark bite. 😉
I'm thinking more about medications than the surgery. We will see what he thinks after the first year is up and it's time to renew the online. I think a medication card in his wallet will be good.
Liked by John, Volunteer Mentor, JK, Volunteer Mentor, Leonard Holloway
@jodeej since I have worn a 2 piece bathing suit in my life, I doubt anyone will see it, thankfully.
My medications are of course listed on the portals for my local hospital and MGH so hopefully I or someone would be able to relay that info.
I like the idea of a medication card in my wallet, I may do that.
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