Median Arcuate Ligament Syndrome (MALS)

I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?

Hello, I had MALS surgery 3 months ago. I was doing extremely well up until 1-2 weeks ago. Nausea can be extreme at times. My question is how long is a "full" recovery of the abdomen after surgery such as this? I had my surgery done laparoscopically. My surgeon also stated that he removed a lot of scar tissue during my surgery. I am just wondering if my nerves and abdomen are still healing.

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Check on Facebook the group MALS awareness. They have a lot of useful information-sorry to hear you’re having problems.

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@jonathand – I’m sorry to hear about your misery. Do you have pain after meals as well? I had same surgery and was fine for a few months, but then the pain returned. The celiac artery never unfolded and I got a stent to keep it open. It works well now. Nausea could have several causes including acid reflux. Check with your doctor if it could be from surgery- maybe they want to check if artery is still parent.

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@ethanmcconkey @astaingegerdm

Hi there my brother has been going through severe abdominal pain for 13 months and he has always had digestion issues. Recently he went to the GI who thought it is gastroparesis but he has received no relief and the pain continues to increase especially when he eats or drinks. We finally found out about MALS through a gastroparesis support group. He got a doppler ultrasound and we are waiting for the report but have the images – just not sure how to read it. He ended up in the ER today and they did a CTA with contrast but they don’t see MALS. I of course want another opinion. Can the ultrasound be enough to get diagnose and be a candidate for the celiac plexus block?

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@rb4hu

@ethanmcconkey @astaingegerdm

Hi there my brother has been going through severe abdominal pain for 13 months and he has always had digestion issues. Recently he went to the GI who thought it is gastroparesis but he has received no relief and the pain continues to increase especially when he eats or drinks. We finally found out about MALS through a gastroparesis support group. He got a doppler ultrasound and we are waiting for the report but have the images – just not sure how to read it. He ended up in the ER today and they did a CTA with contrast but they don’t see MALS. I of course want another opinion. Can the ultrasound be enough to get diagnose and be a candidate for the celiac plexus block?

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@rb4hu – As far as I know an abnormal Doppler ultrasound should be confirmed with a CTA. Since my surgery and stent placement I had follow ups with CTA. However, at my last visit I was told that I can have ultrasound exams. It also depends on the institution doing the test. It is always good to get a second opinion. You would then bring the report on the Doppler and the CTA images. It is possible a vascular surgeon or GI surgeon would have more experience evaluating your brother. If possible, go to a major university medical center. I hope he will get relief soon. I know that pain.

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For people who have had surgery with Dr. Hsu, what does he do differently with the nerves of the celiac plexus than just unroofing them, as other surgeons do? People have commented that he takes a different approach to those nerves, which might account for his success. I couldn’t find any medical papers that he might have written explaining the procedure.

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@kariulrich

@lmtuska, Nice to meet you! I have had 2 MALS surgeries done at Mayo, and would be happy to share any information that would be helpful. Mals in the pediatric population may be a bit different than the adult population. My experience is a bit different as I have an underlying vascular disease. There are two approaches to MALS surgery, laparoscopic and open. I would recommend asking about the pros and cons of both. It sounds like you have opted for the open approach. The open surgery is a long recovery time, for me it was at least a year. This is a small list of things that helped me:

Open MALS Helpful Hints

• No perfume, lotion, hairspray, fabric softener (Smells really bothered me after surgery)

• Needs: 1 size larger underwear and socks, slip on shoes
Loose fitting comfy yoga pants
Undershirt soft to protect clothes from rubbing against the incision

• Several travel size pillows

• Wash everything in dreft before using (My skin was sensitive)

• Unscented lotion for back rubs

• Ice pack help for back pain

• Electronic chair (If you can afford purchasing one, I highly recommend it) Great for sleeping in the first few months or more.

• Foods malt o meal good, pudding, white toast, popsicle, anything easy to digest

• Mask and headphones or ear plugs

• Something from home, small, a stuffed animal anything to keep with you

• Eat slow, very slow If you think you are eating slow eat even slower. Advance diet slowly, VERY SMALL PORTIONS. Use your iPhone during dinner to keep you entertained, yes you should be eating that slow. Eat 1/2 of what you think you can eat. After surgery, there is no longer post prandial pain and your body is malnourished so it is easy to over eat and the fact you want to eat is an amazing feeling in itself. 

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Hi 🙂 please i have a guestin for you i was diagnosed MALS and also a nutcracker syndrome.i will have an open surgery on January 30. So in a few weeks. Wh did you have two surgeries and I year recovery? I am really scared .now are you feeling good ? How many ours did the surgery take ? Thanks for every info

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