Median Arcuate Ligament Syndrome (MALS)

Posted by Kari Ulrich, Alumna Mentor @kariulrich, Dec 26, 2016

I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?

@jpol

I have one strange difference from most people with Mals. I have not lost weight. And when I have pain, i have an overwhelming feeling of hunger and wanting to eat more even though just causes more pain. I currently weigh 300 lbs and am 6' 6" tall.

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Hi @jpol catching up on posts… not everyone with MALS loses weight, however, I do wonder if it has to with the degree of stenosis and stress on other arteries that contributes to weight loss. You may also want to consult with a vascular doctor.

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@kariulrich

Hi @jpol catching up on posts… not everyone with MALS loses weight, however, I do wonder if it has to with the degree of stenosis and stress on other arteries that contributes to weight loss. You may also want to consult with a vascular doctor.

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Not all vascular doctors are familiar with mals. On Facebook there’s a mals group with lots of info.

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@kariulrich

@applegrl Welcome to the MALS discussion! Do you or a family member have similar symptoms?

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I have been diagnosed with MALS.
Has anyone found that a sitting position and abdominal pressure from belts or tight pants exacerbate the pain of MALS?

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YES!!!! I could only eat standing up, or sitting with my knees folded up, like on a chair across from me, and can not wear anything at all tight, or I'd be in extreme agony!

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@tutorgrl

I have been diagnosed with MALS.
Has anyone found that a sitting position and abdominal pressure from belts or tight pants exacerbate the pain of MALS?

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@tutogrl Yes!! I cannot wear belts, I eat laying down sometimes… I often when sitting have my knees up to my chest. I wear low rise pants because I cannot handle anything on my tummy!

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Long time no see… Dr. Hsu refused to do my surgery because of the injury that caused the issue. I've tried everything but the log story is I need this surgery in order to restore functionality of my muscles in my back. Being unable to bend or twist without aggravating the nerve center is causing a lot of other problems.

I need a surgeon list and the types of decompression they do. Does anyone have that info? I've requested access to mals pals but no response yet.

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Yes. I also have a hard time eating in a seated position. My job is sedentary and often I don’t eat until the afternoon. When I go home I lay down which helps tremendously. The down side is I have no life.

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@marideth401

Yes. I also have a hard time eating in a seated position. My job is sedentary and often I don’t eat until the afternoon. When I go home I lay down which helps tremendously. The down side is I have no life.

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Have you considered surgery?

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@dave06351

Long time no see… Dr. Hsu refused to do my surgery because of the injury that caused the issue. I've tried everything but the log story is I need this surgery in order to restore functionality of my muscles in my back. Being unable to bend or twist without aggravating the nerve center is causing a lot of other problems.

I need a surgeon list and the types of decompression they do. Does anyone have that info? I've requested access to mals pals but no response yet.

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@dave06351

That link doesn't work for me. Maybe because I'm using a smartphone for access.

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Let's try this!

Shared files

UPDATED MALS SURGEON LIST 3 (UPDATED-MALS-SURGEON-LIST-3.25.18.pdf)

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@kariulrich

@tutogrl Yes!! I cannot wear belts, I eat laying down sometimes… I often when sitting have my knees up to my chest. I wear low rise pants because I cannot handle anything on my tummy!

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I have the same issue. I now have a hernia from my MALS surgery in 2013. I'm having issues as I did before surgery. No one wants to touch me. Do you think coming to Mayo since I have FMD as well will help? Thanks!

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Does anyone find that they crave salt and absolutely NEED it? I'm wondering if this is a symptom MALS patients have, or if it's just me:)

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@kariulrich

Thank you, Yes @lisa01 I am part of MALS PALS, but I do like the security of being here on Mayo connect vs Facebook when it comes to health information security. I was hoping that a group would start here for MALS. If we had enough patients here on Mayo Connect maybe they would consider doing a webinar in the future. I really like the format of this site. I have had Open Mals surgery twice, once for a bypass and then a revision several years later. If there is anyone interested in joining me here let me know.

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I'm interested
I underwent a SMA bypass surgery 10 hours and now am facing the next battle with my Celiac diagnosed with both disorders.

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In reply to @kariulrich "Let's try this!" + (show)
@kariulrich

Let's try this!

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Hi @kariulrich

It’s been a long time since I have been on here due to poor health. December was the last time I was able to log in so I have a lot to catch up on. I was wondering if you have heard anything from @racheldmark, how is her uncle @ruudolpho has he made any improvements since December?

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