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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: 9 hours ago | Replies (1157)

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@ukmalsman

Hi Jill
I am so sorry you're still having problems with MALs, it's funny you should mention you were always skinny so there was not much weight to lose. I was the same, all my life I was skinny with abdominal pain on and off; maybe it is something we are born with that afftects our matabolism? (I wonder how many other MALs sufferers were slim in their youth?) You mentioned that your velocity is up again and they suggested a balloon; I think you were quite right to hold off. I have read a lot of talk about stenosis of the artery, has the consultant mentioned any dialation. I have stenosis of the celiac artery, but it is also dialated at the other end. I only mention this because my consultant advised me not to fly, which meant I missed my older brothers wedding which was abroad. It is a question you should ask your consultant. Your consultant seems to focus on the stenosis and blood flow. Have they looked at your Celiac Plexus which is a bundle of nerves near your Celiac trunk. Has that been affected by the ligament compression? There may be scaring/scar tissue on the celiac plexus which may be the source of most of your pain. Finally I'm guessing that if you had an angioplasty in the past they also performed surgery to release the median arcuate ligament from compressing the artery. I am new to Mayo so I don't know what procedures or pain relief you have tried. I put a post up about meds so if you have any questions please ask. Keep writing and posting as there are so many people in your situation that need the information.
Take care,
Mark

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Replies to "Hi Jill I am so sorry you're still having problems with MALs, it's funny you should..."

I was skinny all my life! I consumed a lot of milk shakes as a child to gain weight but that didn’t work.

Hi Mark,
Mine is a weird story. Nothing about my medical conditions is 'normal' or fit the profile. I just went to the er one night for pain meds cause it was really bad. They did ct scan and told me my arteries are narrowed and to see a vascular surgeon. I saw the chief of vascular surgery at a university hospital. I was lucky. I had no idea what to expect, didn't think a big deal. I was a special ed teacher and thought I would be back in a month. That was almost 5 years ago. It was about an 8 hour open surgery. ICU for 3 days then reg room. I was totally drugged up, don't remember much. The surgeon wrote and published a journal article on me since I was so rare. The diaphragm was not only crushing the celiac but also the SMA, which is extremely. It was a lot of work in there. My pain was gone but a very long difficult recovery. Then major stresses. My dad suddenly passed away and I was POA. I had 2 sisters who were extremely pissed and started 3 years of pure hell for me. My mom had beginning Alzheimer's and I was the one that would care for her when my dad passed, of course thinking that would be way down the road. She was all upset with my sisters, it was just terrible.
So the reason I say this is the stress during this basically killed my body. During this time, not even a year after first surgery my arteries narrowed again. I should have had a by pass but way to weak. Surgeon said I would never make it. So I got stents put in each artery. That held for awhile then, balloon. My original surgeon moved to another state. My second surgeon was good. I didn't know about the nerves and all that because I never researched or anything because I was taking care of my mother and dealing with them. I learned things on these sites. My mom passed and my sisters were taking me to court, basically my lawyer said to go because I had all evidence and I would win, but my body just couldn't take it so we settled in mediation and signed contract to communication. So sad. My dad said they would give me trouble, he was right. Anyway, The reason I tell you this is because I just got diagnosed with dysautonomia, POTS and MCAS. This is all from what my sisters did to me. I would have been able to go back to work and probably had the bypass so my condition is not from the MALS.
My surgeon now is from Mayo and he is awesome, but not to familiar with MALS. I may need to get back in contact with my original surgeon. He is chief of staff at Baylor College of medicine, but I know he will remember me.....haha
Well that is sort of my story summed up. Sorry this is so long. I never thought about the flying. I do have reports with dilation, and we were going to do celiac block, but all the dysautonomia stuff took over.
Well good luck to you,
Jill