May have undiagnosed autoimmune disease

Thank you so much for the list of labs.
Linda

ANA is only a picture of what your body was doing for a short time. My mom had a horrible case of lupus with all kinds of things attached to it, yet sometimes her ANA was negative which seems impossible. IF it’s positive it gives them more information than if it’s negative.

I just gave up an did genetic testing. We shall see. I have always been against it.

I will be interested in your genetic results and their meaning

So interesting you would post that because that’s what I’m thinking about me. Since Jan. 2021 my symptoms started. I’ve had flare ups body wide with intense pain, muscles have atrophied, numbness body wide, tingling feet/toes. Hands/wrists so painful every day. I was diagnosed Central Pain Amplification by a pain specialist 2 years ago. My neck and spinal cord have been affected. I’m going to ask my GP to refer me to a neurologist at the Neuroscience Center at the big University near me. I need more testing. Maybe you do too. I use Lidocaine patches and cream. CBD cream for my hands and Volatran.

Nice to meet you. If you see a neurologist ask him about peripheral neuropathy,it causes tingling in feet lower legs,hands and fingers. It is treated with gabapentin and usually lasts up to five years.i had it.Inyour case like mine,there are two auto immune diseases that can both cause all our symptoms. They are Long Term COVID and Lyme disease.Both can trigger inflammation of all kinds everywhere in the body. Even if you test negative for Lyme, tests are only 50% accurate. I had treatment for three months and it didn’t stop it. But I have had it with and without positive testing because I am surrounded by forest. And treatment worked.Recently I realized I might have hypmyalgia Rheumatica which explained some symptoms not all.Predisone helped many of our mutual symptoms ,not all and didn’t completely eliminate them totally but helmed a great deal. Consider it. Both diseases above can trigger it. Where are you located.Midwest , northeast?

Hi! A good friend of ours , in his forties, became very sick. He was taken to the E.R. three times. Every time he went they couldn't find anything wrong. He went to the doctor several times! They thought he had POTS. They sent him to have a sleep test because he had a terrible time sleeping. He couldn't lay down. The sleep test was normal.
He was sent to a Cardiologist where he was diagnosed with Long Covid causing Pericarditis!
When he got up from sitting he would be incredibly dizzy, his heart was pounding and his face would turn pale. His fatigue was overwhelming! He had arythmia attacks every couple of minutes. He had many symptoms. He was sick for a year! The Cardiologist told him not to have caffeine or any type of stimulants. He was also on a couple of medications.
He started to have little improvements.
Now, around 16 months later he is able to work part-time. He has a desk job without anything physical. He's not 100% better for sure but he's finally improving!
His symptoms started after he had a flu shot. He didn't know he had COVID at that time.
It's been an absolute nightmare! I hope this might help you.
Take care ❣️

I’m in the West. I thought peripheral neuropathy just continued for life and its effects getting worse and worse. I’ve had it 4 years. I do think aI need more pain relief than the 900 mg Gabapentin I’m taking now. Thank you for the advice.

When I went a neurologist at the Lahey clinic just outside Boston,she said some other patients took 4000 mg of gabapentin daily.aaShe told me most cases died off after five years but not all. Hope yours starts to improve in another year or so.

Thank you!