Being treated for breast cancer, having a mastectomy and was wondering what people did for reconstruction?
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I am having my reconstruction in August. I went to over all the options and decided to go with an implant. I have already done the spacer so now they will place the real implant. I was going to do a flap but I am 72 and my doctor thought the procedure would be too much.
I recently was diagnosed with breast cancer. Fortunately my overall prognosis is very good. The cancer has not spread and the doctors do not think I will need chemotherapy. My tumor is quite large however. As a result, I have to have a mastectomy. I have decided that I would like to do the reconstruction and I am leaning toward using my own tissue. This is a very complicated procedure, so before I make a final decision, I would love to hear from someone who has been through this type of reconstruction.
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@catann, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this existing discussion about breast reconstruction. I did this so you can connect with @bomashisha @nataliehope @sandyjr @lucillem72 @bmerxbauer @casualobserver @jspencer @kruzin and others. Simply click VIEW & REPLY in the email notification to read through the past posts.
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Catann, will surgery be the only treatment you'll need or will you have radiation? Feel free to ask questions. There's a whole group waiting to help 🙂
Hi, how big is your tumor? I did not opt for any surgery. I was diagnosed with stage 1 IDC low growth. I just radically changed my lifestyle and diet, I feel better now than I ever did. I’m 42.
Hi I am debating nipple sparing double Mastectomy. How are you recovering are you happy with your decision almost a year and a half later? I loved all the points you made and I have similar thoughts and beliefs, I am 42 stage one IDC.
Hi nataliehope, I am sorry I did not see this until now. I hope this is not too late to be of help.
As you know, I did have the nipple-sparing double mastectomy. I am now 25 months post-op and am still happy with my decision. I am alive and healthy and am glad to have passed the dreaded 2-year mark.
Re my recovery, I will share my journey and observations. (Caution: Long post ahead!)
1. From the beginning, both nipples retained sensation, which was a relief. They became blanched (pale) after the surgery due to some of the nerves and circulation being cut, and they have remained so since.
2. The implants put in were larger than my breasts before surgery. The reconstructive surgeon had asked me, "do you want to go smaller or larger?" I replied, "Well, not smaller, but maybe a little more perky?". She told me after the procedure in my follow-up that the team of doctors looked at the options (they bring 3 sets with them to surgery) and had voted on the best choice. I now have a D-cup. I had a C-cup before. The weight of the breast implants required that for at least the first 18 months I had to wear a bra, day or night or my breasts would ache from the pull on the tissue. Would it have been less if I hadn't gone bigger? I don't know. Now, I can go around bra-less at home and am fine. Sometimes though, I can feel that I need to put a bra back on for a bit. I was a curvy girl, so going smaller (or without breasts at all) would not have appealed to me or my husband I don't think.
3. The area from the nipples to the center of my chest never lost sensation, but from the nipple all the way around to the sides of my back and halfway down my stomach was numb for quite a while. Now, I have an area the size of my hand from my arm pits to my nipple on each side that is still numb. Everything else has gotten feeling back. This same area is cooler than the rest of the breast and stomach, but not enough to matter.
4. The genomics tests I had done had indicated that I would not be helped with radiation or chemotherapy. That was a relief as I really did not want either. I did have to go off my female hormone replacement therapy and that was difficult at first. I began getting hot flashes, started to lose hair around my front hairline and had other 'dry' issues. I also became ravenous and struggled with weight gain that would not come off. That has abated, somewhat.
5. Post surgery, I was grateful to have seen a very kind Integrative Medicine Doctor at Mayo who talked to me about 'why' I got cancer. I was a former athlete, non-smoker, non-drinker, health nut. He was very helpful. He mentioned that pain, sorrow, stress, and unhappiness will weaken the immune system. I had gone through some terrible years of stress and sorrow before my cancer diagnosis. He suggested that I protect myself and try and prevent a further occurrence of cancer. He directed me to get as thin as I could, healthfully. Fat holds inflammation. Stopping my replacement hormones stimulated my appetite. He told me my body wanted to build fat to replace the missing estrogen and that is why I was very hungry all the time. He said I had to fight it and lose any fat I had anyway.
He wanted me to do exercise and meditation. He gave me tapes to listen to. He recommended yoga, and other slow moving exercises like Qigong. He told me to remove or avoid individuals in my life who cause me grief or pain. He said to remove myself from a situation if I felt upset for any reason. I have done this. Even things like a violent movie or something on the news. I just get up and exit the room for a minute and take deep breaths. My family understands this.
6. My cancer was Stage III-A, invasive and in situ. My right breast had 3 fairly large tumors and one mass of unknown origin (??). Two lymph nodes tested positive and so the surgeon removed a whole line of them for good measure – 17 of them! So, my right arm sometimes aches and swells a bit if I am doing a lot of computer work or housecleaning. I just gently massage and elevate it and it is OK.
7. There are a number of non-FDA approved remedies coming to light that are in clinical studies for cancer eradication or prevention. I am a dedicated researcher and have read many studies. Many of these remedies are obtainable over the counter right now and for little cost. I take several of them along with many, many specific vitamins. So far, so good.
I hope you are well, and if there is anything else you can think of that I can answer, please let me know.
Good luck to you and all the other ladies out there!
As they say, "Where we go one, we go all!"
I would like to give my opinion and you can do whatever you want with it.
I had one breast that had 3 tumors and 1 mass of unknown origin (?) and together they spanned from the 6:00 o'clock position all the way around the outside of my right breast to the 1:00 o'clock position. I opted for mastectomy on BOTH sides with immediate replacement with silicone implants. That means I would never need to come back for a cancer in the other one in the future.
Also, it would be one surgery, one insurance claim, two matching breast implants of equal size, matching equal scars, and only one recovery. Plus, no more mammograms, MRIs or biopsies or pokes or prods or worries about the remaining good breast in the future.
Removing that worry and that dread of recurrence in the other breast was important to me, and so it was a 'One and Done'. It has now been 25 months since surgery and I am doing fine and have a nice set of matching breasts that look very nice in clothes and not too bad naked, if you don't mind the single 4.5 inch-long scars on the sides of each breast.
Why choose implants over an autologous fat & tissue transfer? Well, I'll tell you why I did. First, I am a researcher and read everything I could get my hands on and learned everything I could before coming to my decision. I learned that removing tissue from one part of the body and moving it to another is not so simple.
The donor site will have quite a bit of surgery and will be vulnerable to infection and be painful and require care and recovery.
Also, removing large areas of tissue and fat may cause the donor area to look abnormal and deformed, rendering that part of your body unsatisfactory and a source of disappointment. (We have this fantasy that we will remove that spare fat around the hips or the waist and put it in the breast getting a 'Two-fer'). The truth is, that is not what will happen. The preferred technique to liposuction fat for aesthetics, will damage the fat cells, but preserve the aesthetics. The technique to harvest fat and tissue for reuse is focused on preserving the fat integrity and not so much on the aesthetics of the area you are removing it from, if you follow. It is more invasive and will leave large scars and depressions unless you have a very skilled surgeon with much experience in this technique.
Additionally, the donor fat and tissue can sometimes fail to develop an adequate blood supply at its new location, thus requiring multiple attempts. Even when successful, the transplanted fat can develop granulomas which are opaque can be mistaken for potential tumors on an MRI.
Also, there is the issue of shape. Trying to approximate the breast you had with the tissue from your abdomen, flank or thighs may look different from the breast you were hoping for. Sometimes, more surgery or liposuction and injections must be made, to get the shape and size approximation you wish. It may never look like the other breast. Only you can decide if that matters to you, and how much pain and recovery you are willing to go through to create a 'non-implant' breast.
Remember, you will be creating a wound in a healthy part of your body and will have two locations of injury rather than just one.
I say, why deface and injure another part of your body if you don't have to? It is a much simpler procedure to place a perfectly sized and shaped breast implant in the space of your former breast and just recover from that. I think I know that you were hoping to avoid the potential issues that breast implants present, but they truly can last a very long time (20+ years) if you take care of them.
I hope this was of some help. Only you can decide what is best for you. Do lots of research and satisfy yourself.
The dreaded two-year mark that you refer to?
Hi, Catann. I hate that you are having to go through this, but I am thrilled to hear your overall prognosis is very good. I would like to know whether or not your cancer is triple negative. Mine was and I think it is helpful to know in order to figure out treatment, surgery, etc.
The type of cancer I had is an uncommon type to find in the breast. The pathology report gave the name and type of it, which led me on a grand quest to learn all I could about this cancer and what I could do about it. I had not scheduled my surgery yet and I wanted to know what type of treatments were effective, what outcome I might expect, and if there were any new therapies on the horizon. With the name and type, I was able to find plenty of information about it. What I found was troubling.
Only one national study could be found with women who had this type of cancer in their breasts. It included 36 women who were followed for 10 years. The study described the different treatments that were given and the results of each. Neither chemo nor radiation had any positive effect, and in fact chemo made things worse. (My own genomics test following my surgery confirmed that neither were recommended.)
Of these 36 women, the first one died at the 9-month post-diagnosis mark. At the two-year mark, most were gone. At the 3-year mark, only one woman was still alive. That woman was still alive at the end of the 10-year study.
My question was why? Why did the one woman survive and the others didn't? What was it about this cancer that made treatments ineffective? I became quite proficient in my research to find everything I could learn to help myself.
After my surgery, they said I was a Stage III-A , which of course is dictated by how many tumors are found, how large they are, whether it has spread to other areas, whether lymph nodes are involved, etc.
Simple research on women with a Stage III-A diagnosis (not even considering the rare strain of cancer I had) showed that many women do not make it to the 2-year mark. Then, the next hurdle is making it to the 5-year mark. After 5 years, the odds of breast cancer death for a 'generic' Stage III-A go to 50%.
So, for me, it is a triumph that I have passed the 2-year mark and am still currently cancer-free.
May I ask what the tumor was? The reason I ask is because the second lesion I had in the same breast was a very rare one to start in the breast, neuroendocrine cancer. It usually starts elsewhere and then spreads. I have had PET scans every 6 months since then as a precaution to be on the look out for spread and at the last one had a very small lesion in my lung which is too small to biopsy so will be having another PET scan now in 3 months.
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