Being treated for breast cancer, having a mastectomy and was wondering what people did for reconstruction?
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May I ask what the tumor was? The reason I ask is because the second lesion I had in the same breast was a very rare one to start in the breast, neuroendocrine cancer. It usually starts elsewhere and then spreads. I have had PET scans every 6 months since then as a precaution to be on the look out for spread and at the last one had a very small lesion in my lung which is too small to biopsy so will be having another PET scan now in 3 months.
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Hi trixie1313. I had multiple tumors in one breast, both invasive lobular carcinoma and infiltrating ductal carcinoma. It also spread to two lymph nodes. The type of cancer the pathologist described was Signet-ring cell carcinoma (SRCC). It is a unique subtype of mucin-producing adenocarcinoma. According to my research, this cancer rarely presents in the breast as its first location. In one article it said that if you find it in the breast, you should look and see where else it is. The gastric area is usually the most common location that it presents. Armed with this information, after I recovered from my double mastectomy, I had numerous other investigations, MRIs, ultrasounds, etc., to scan the rest of my body for masses. So far, no others have been found.
I am continuing to take numerous specific vitamins and other remedies currently off-label that are being investigated for their benefits in going after tumors.
It is being shown that certain anti-parasite remedies go after cancer tumors the same way they go after parasites like malaria, and certain intestinal parasites. There are many people trying this protocol. I am one of them.
Read up on these anti-parasite remedies and their use related to cancer: Fenbendazole, Mebendazole and Hydroxychloroquine.
Also read up on Joe Tippens and his cancer journey. It is very interesting. Here is a link if they will allow it: https://www.mycancerstory.rocks/single-post/2016/08/22/Shake-up-your-life-how-to-change-your-own-perspective
Let me know if I can be of any other help.
We all must help each other here. This journey can be best had with friends to lean on.
Thanks for the info. Sounds like we both have rare and aggressive cancers that normally don't begin in the breast. Mine is in less than 0.5% of the population. And due to the aggressive nature, that is why they are doing PET scans every 6 months and now 3 months due to the new lesion in my lung. My first lesion in the breast was invasive ductal ca with erosion from the lymph nodes. We only found the neuroendocrine tumor because I insisted on MRI of the breast, otherwise, that would escape notice. In addition, I was lucky where I had surgery that the pathologist stained for neuroendocrine cancer. Many of these go unnoticed because not all pathologists due that staining. Steve Jobs had what everyone thought was pancreatic cancer, but in fact was actually neuroendocrine cancer of the pancreas.
You are a strong woman.You seem to be doing everything good. You are in my prayers
I have not heard of neuroendocrine cancer. Take care.
I had a double mastectomy with DIEP reconstruction. I had my surgeries in New Orleans with the wonderful doctors at the Center for Restorative Breast Surgery (breastcenter.com). I was very pleased with the way my surgery turned out and love the doctors there. Drs. Scott Sullivan and Frank DellaCroce were the surgeons who performed the reconstruction, and one of the doctors who is no longer there did my mastectomy.
can you share with me how your stomach scar is? how visible? does it cause soreness or weakness? thank you
I would like to give my opinion and you can do whatever you want with it.
I had one breast that had 3 tumors and 1 mass of unknown origin (?) and together they spanned from the 6:00 o'clock position all the way around the outside of my right breast to the 1:00 o'clock position. I opted for mastectomy on BOTH sides with immediate replacement with silicone implants. That means I would never need to come back for a cancer in the other one in the future.
Also, it would be one surgery, one insurance claim, two matching breast implants of equal size, matching equal scars, and only one recovery. Plus, no more mammograms, MRIs or biopsies or pokes or prods or worries about the remaining good breast in the future.
Removing that worry and that dread of recurrence in the other breast was important to me, and so it was a 'One and Done'. It has now been 25 months since surgery and I am doing fine and have a nice set of matching breasts that look very nice in clothes and not too bad naked, if you don't mind the single 4.5 inch-long scars on the sides of each breast.
Why choose implants over an autologous fat & tissue transfer? Well, I'll tell you why I did. First, I am a researcher and read everything I could get my hands on and learned everything I could before coming to my decision. I learned that removing tissue from one part of the body and moving it to another is not so simple.
The donor site will have quite a bit of surgery and will be vulnerable to infection and be painful and require care and recovery.
Also, removing large areas of tissue and fat may cause the donor area to look abnormal and deformed, rendering that part of your body unsatisfactory and a source of disappointment. (We have this fantasy that we will remove that spare fat around the hips or the waist and put it in the breast getting a 'Two-fer'). The truth is, that is not what will happen. The preferred technique to liposuction fat for aesthetics, will damage the fat cells, but preserve the aesthetics. The technique to harvest fat and tissue for reuse is focused on preserving the fat integrity and not so much on the aesthetics of the area you are removing it from, if you follow. It is more invasive and will leave large scars and depressions unless you have a very skilled surgeon with much experience in this technique.
Additionally, the donor fat and tissue can sometimes fail to develop an adequate blood supply at its new location, thus requiring multiple attempts. Even when successful, the transplanted fat can develop granulomas which are opaque can be mistaken for potential tumors on an MRI.
Also, there is the issue of shape. Trying to approximate the breast you had with the tissue from your abdomen, flank or thighs may look different from the breast you were hoping for. Sometimes, more surgery or liposuction and injections must be made, to get the shape and size approximation you wish. It may never look like the other breast. Only you can decide if that matters to you, and how much pain and recovery you are willing to go through to create a 'non-implant' breast.
Remember, you will be creating a wound in a healthy part of your body and will have two locations of injury rather than just one.
I say, why deface and injure another part of your body if you don't have to? It is a much simpler procedure to place a perfectly sized and shaped breast implant in the space of your former breast and just recover from that. I think I know that you were hoping to avoid the potential issues that breast implants present, but they truly can last a very long time (20+ years) if you take care of them.
I hope this was of some help. Only you can decide what is best for you. Do lots of research and satisfy yourself.
Hi thanks for sharing your thoughts! Did you have radiation?
Hi yahomich, I had neither chemo nor radiation before or after my surgery.
The incision on my lower abdomen goes from the side of the hip to the side of the hip and goes down along the hairline. It is new so I’m not gonna know for a while how it will look.. I’m pretty sure I can wear bikini underwear and it would not show. I have feeling all along The scar. There is no pain. I have read that some people have numbness and pain and that their abdomen is distorted. I have none of that. If you are considering this, the best thing to do is find an excellent plastic surgeon. I found mine by going to a lecture at a local hospital and he was just a wealth of information and brought pics and described how he did things. I felt very safe with him and everything he has told me has been right on. I do not know where you live but would be glad to share his name with you. There is supposed to be a wonderful place in New Orleans with wonderful doctors. I think the key is the plastic surgeon. I think the radiation could damage your breast skin which may affect whether you could have nipple sparing surgery or skin sparing surgery. If you are thinking of having a mastectomy with the diep flap surgery you might reconsider the radiation. I do not know anything about your case and am not a doctor so take this information Lightly. If only one breast is involved then that changes a lot of stuff. Mine was bilateral.
I have the same scar and I had the doctors at the Breast Center in New Orleans and I highly recommend them. They even fixed an icky scar I had from my hysterectomy. You can hardly see the scar. I had a mastectomy with DIEP FLAP surgery immediately following.
thank you for feedback
thank you sandy that is great info!!! Where did you go for your surgery
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