Looking for an app to help with what to eat for chronic kidney disease

Posted by ms9246 @ms9246, Jul 16, 2021

A good renal app. To help me with my foods, what I should have, what I can’t have, to avoid completely. I’m very new with this and I have lost tons of weight trying to figure this out. I have stage three kidney disease with my With my functions going up and down.

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Hi Margaret, I have stage 3B and my Drs. don't even talk about diet, even when I ask about it!!!

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@patgil128

Hi Margaret, I have stage 3B and my Drs. don't even talk about diet, even when I ask about it!!!

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My doctor didn’t! I put myself on one. The way my numbers were fluctuating I didn’t want them to go down anymore than what they were. I’m upset with my pcp because he’s being so nonchalant about this. I also have a store lodged in my kidney that he’s not worried about.

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@ms9246

My doctor didn’t! I put myself on one. The way my numbers were fluctuating I didn’t want them to go down anymore than what they were. I’m upset with my pcp because he’s being so nonchalant about this. I also have a store lodged in my kidney that he’s not worried about.

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@ms9246, I want drop in here and share a quick note. I am a liver and kidney transplant recipient. I don't remember the reason, but I had to go to the ER and a CT scan was performed at my local hospital. (not my transplant center) The CT showed a small kidney stone according to the written report. The local doc didn't mention it. So I brought it to the attention of my kidney transplant team, who thought it was something to investigate. When I asked why the local doc ignored it, they said that sometimes a specialist sees things that are not important in a routine regular appointment or a non specialist.
Have you considered being evaluated by a kidney specialist?

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@ms9246, you'll notice that I modified the title of this discussion to gather tips from members regarding apps and other tools to help with managing diet and chronic kidney disease.

See this related discussion:
– Stage 3 Kidney Disease and Diet: What can I eat? https://connect.mayoclinic.org/discussion/3rd-stage-kidney-disease/

Many members in the discussion linked above recommend the website Davita. Here are the tools and apps that Davita recommend for diet and more:
https://www.davita.com/tools
Margaret and @patgil128, have you considered requesting a consult with a kidney dietition?

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Hi @ms9246
I’m like you in CKD Stage 3b and wanting to eat the right foods to slow progression. I found that if you do a search of Stage 4 CKD diet, there is a lot of information available including lists of foods. When I ask my doctor if I need to be on a special diet he says not yet. I assume that Stage 4 CKD is when we need to make that change. But like you I want to start now. My eGFR has been 34 for the last 2 tests a year apart, so my doctor says it’s stable but all it takes is new Rx or an illness to lower it. Also whenever I get a new Rx I always ask for the Renal dose, because I think doctors sometimes forget to do that. I also have looked up my Rxs online to see what the Renal dose is supposed to be.

NJH

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@njh

Hi @ms9246
I’m like you in CKD Stage 3b and wanting to eat the right foods to slow progression. I found that if you do a search of Stage 4 CKD diet, there is a lot of information available including lists of foods. When I ask my doctor if I need to be on a special diet he says not yet. I assume that Stage 4 CKD is when we need to make that change. But like you I want to start now. My eGFR has been 34 for the last 2 tests a year apart, so my doctor says it’s stable but all it takes is new Rx or an illness to lower it. Also whenever I get a new Rx I always ask for the Renal dose, because I think doctors sometimes forget to do that. I also have looked up my Rxs online to see what the Renal dose is supposed to be.

NJH

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@njh I did the same thing as you! I put myself on a renal diet while still at a high Stage 3 level. My drs said it wasn't needed, but I wanted to slow progression of CKD. I knew the cause of my CKD would lower my function slowly, so I gave up potatoes, oranges, bananas, tomatoes to start with, and worked into following a renal diet. I am Stage 4 now, at 22% function. And like you, all medications are weighed against on renal interaction. I am on Gabapentin, but take only 200 mg per day, to ease kidney effect, rather than 3000mg a "normal" person can take!
Ginger

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@rosemarya

@ms9246, I want drop in here and share a quick note. I am a liver and kidney transplant recipient. I don't remember the reason, but I had to go to the ER and a CT scan was performed at my local hospital. (not my transplant center) The CT showed a small kidney stone according to the written report. The local doc didn't mention it. So I brought it to the attention of my kidney transplant team, who thought it was something to investigate. When I asked why the local doc ignored it, they said that sometimes a specialist sees things that are not important in a routine regular appointment or a non specialist.
Have you considered being evaluated by a kidney specialist?

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Thank you so much! I’m going to do that because my doctor is not taking this seriously which I think is absolutely ridiculous.

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@njh

Hi @ms9246
I’m like you in CKD Stage 3b and wanting to eat the right foods to slow progression. I found that if you do a search of Stage 4 CKD diet, there is a lot of information available including lists of foods. When I ask my doctor if I need to be on a special diet he says not yet. I assume that Stage 4 CKD is when we need to make that change. But like you I want to start now. My eGFR has been 34 for the last 2 tests a year apart, so my doctor says it’s stable but all it takes is new Rx or an illness to lower it. Also whenever I get a new Rx I always ask for the Renal dose, because I think doctors sometimes forget to do that. I also have looked up my Rxs online to see what the Renal dose is supposed to be.

NJH

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Thank you so much for all of this information! I appreciate it from the bottom of my heart.

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@gingerw

@njh I did the same thing as you! I put myself on a renal diet while still at a high Stage 3 level. My drs said it wasn't needed, but I wanted to slow progression of CKD. I knew the cause of my CKD would lower my function slowly, so I gave up potatoes, oranges, bananas, tomatoes to start with, and worked into following a renal diet. I am Stage 4 now, at 22% function. And like you, all medications are weighed against on renal interaction. I am on Gabapentin, but take only 200 mg per day, to ease kidney effect, rather than 3000mg a "normal" person can take!
Ginger

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I’ve taken myself Off of all meds except my natural vitamins. It’s so hard because I had a C-2 through T-1 cervical fusion 4 years ago and I am always in pain. Right now I’m not even taking Tylenol for it so I can try and get my numbers up.😂

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@ms9246

I’ve taken myself Off of all meds except my natural vitamins. It’s so hard because I had a C-2 through T-1 cervical fusion 4 years ago and I am always in pain. Right now I’m not even taking Tylenol for it so I can try and get my numbers up.😂

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Hi @ms9246
I hope you are able to find the information on CKD diets and it is helpful. I applaud your being able to stop all of your meds to get your eGFR up. I haven’t stopped any of my meds except NSAIDS, Prednisone and OTC meds/supplements not recommended by my doctors. I do use Pulmicort steroid inhaler for Asthma and Nasilide (flunisolide) nasal spray for Sinusitis. I sometimes take Budesonide 3mg for Microscopic (Lymphocytic) Colitis, but have stopped taking Prednisone for Gout now that Uloric has stopped it and brought Uric Acid down to 2.4.
I have decided that I will not do Dialysis/Transplant if I reach Stage 5 for many reasons. They include age, very complex medical history with sensitivity and allergies to a very long list of meds which would make any benefit unlikely. I am allergic to almost every antibiotic and have had Abscesses, Cellulitus and Serous Peritonitis from strong steroids. I will see a Nephrologist at University of Michigan in August and will request to be in their conservative care program. If I was younger or still raising children I might think differently. I will follow any diet recommendations they suggest and will see what meds they want me to stop or change.

NJH

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@johnbishop

I looked up the two apps recommended Pocket Dietician and Healthy Foods. Neither is available. Do you know of an app that helps track foods.?

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