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Many months of 24/7 vertigo...very debilitating

Posted by @hopefulbaby6 in Brain & Nervous System, Mar 22, 2012

Hi all, this is my first post on this site. I have had Rheumatoid Arthritis for 13 years, I am currently 45, turn 46 shortly. I have been on many biologics, basically since they came out, including Remicade, Enbrel, Humira, and Orencia. After having many infections in a short amount of time (approx. 2 months), I was on and off of my Humira. During this period, I woke up with extreme dizziness, 24/7, do not even have to move my head or open my eyes. This lasted for 8 1/2 months! I quit my Humira all together, as we had to look at this as a possible reason for my central vertigo. It has been proven through inner ear testing that it is central. I also had an MRI of brain done which came back normal. My RA and Osteoporosis became very bad after being off the biologics for about a year due to the horrible vertigo. It became so bad that I finally decided recently to try Orencia. My vertigo had subsided, and it was about 85% gone for about 2 1/2 months, then returned after only a month on Orencia, and is exactly as it was before, 24/7, very miserable, in which my head perceives it is in constant motion. I have a rocking sensation in my head at all times, worse when laying down, feel very drugged, very off balance. I have to believe this is due to these biologics!! Has anyone else experienced anything like this with biologics or other meds for other chronic illnesses? I would so appreciate your comments! I have been to several neurologists who cannot grasp this, so I have been left to suffer immensely...Thanks for your time!

Tags: Vertigo


Posted by @mamaitaly, Mar 22, 2012

Hello, I do not have any experience with boilogic medicine but I suffered from Vertigo for several years. Every single minute of the day. I was tested for all kinds of things and the only thing that gave me my life back was getting craniosacral therapy with an orthobionomist. (a tmj specialist) This completely relieved the vertigo. Just thought you might consider this idea. Good luck:)


Posted by @hopefulbaby6, Mar 22, 2012

Thank you sooo very much for replying MamaItaly! I will bring that up and consider it!


Posted by @mamaitaly, Mar 23, 2012

You are so very welcome! I hope you figure it out. Vertigo is a horrible thing to deal with every day! Keep in touch and let me know how you are.


Posted by @hopefulbaby6, Mar 27, 2012

You are a sweetheart! Will do...


Posted by @susanhively, Apr 12, 2012

I suffered with vertigo and was relieved by wearing a transdermscope (sp?) patch like that worn to combat seasickness. I settled on 1/2 a patch for 3 days at a time. I did develop an allergic reaction to the adhesive and treated it with a topical cream.


Posted by @alexsimon, Apr 18, 2012

I am sorry to hear about how you are feeling. If you are intersted in seeing a Mayo Clinic physician to disucss your health, please click on the "Request an Appointment" link on the upper right hand corner of the screen.

I hope you are feeling better soon!


Posted by @bigskygal1, Feb 21, 2013

Google BPPV and see if those symptoms coincide with yours. There is a solultion if BPPV is what you have.

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