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Managing eosinophilic asthma for best quality of life

Posted by marciaalongworth @marciaalongworth, Jul 4 7:23am

I had allergic asthma starting at age. As an adult it infection induced. At age 68 I developed allergic eosinophilic asthma. 3 years in, with Fasenra and other standard daily meds including Advair, Montelukast, Claritin, and nasal rinse with budesonide, it is now non allergic eosinophilic asthma. Flare ups last about 12 weeks. My main trigger appears to be exposure to a virus or bacterial infection when we are in a group setting outside our normal set of friends, or a GI reflux flare. I have terrible sinus infections with each flare. During my last flare up I lost my hearing in the left ear. While some of it returned, I have loud tinnitus in it much of the time. There is some part of every day that I just don’t feel good - light headed, or a cough, or tightness in my chest, short of breath, or cold, or no voice, or whatever. Have any of you who have this illness found ways to manage for improved quality of life ? My pulmonologist has assured me that I am doing all that I can. Looking for a needle in a haystack! Thanks

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mth13 | @mth13 | 3 hours ago
In reply to @kathyjjb "@mth13 Thanks for posting! I did not know that and will definitely bring up to my..." + (show)
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@mth13 Thanks for posting! I did not know that and will definitely bring up to my Pulmonologist during my next visit. I have mild asthma, BE, and reactive airways-so I get inflammation as a result of eosinophils. leukotrienes, neutrophils, and who knows what else. During allergy season Montelukast takes me from not being able to breathe to breathing fairly well. That said, my eosinophils have been elevated and want to make sure I'm not taking something for 1 thing, that is making something else worse.

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@kathyjjb Glad if this helps you.Many doctors are not aware of some side effects and this site is valuable as we connect our dots together. I have found an old fashioned product which works for my sinus stuffiness. NasalCrom has been on the market for many years. You have to take one spray each nostril every 4-6 hours and not blow your nose for maybe 15 minutes afterwards. It stops Mast cells from putting out histamines. It is mon steroidal and can be used with other allergy meds if needed. You have to keep it up for it to work but I have found definite benefit! Just keep it in your purse so you have it handy. Maybe keep a second one on the nightstand to remember each morning and night. Also do not use the generic form of azelastine sodium which is over the counter Astepro antihistamine. It has something in it which can make sinusitis worse! Stick to the azelastine sodium if taking an antihistamine nasal spray. We live with these health issues and if we are lucky we learn and pass those ideas on to others.
Keep learning!
MYH13

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