1. < Brain Tumor
Profile picture for vgigic

Malignant Solitary Fibrous Tumor of the brain

Posted by vgigic @vgigic, Oct 25 5:29pm

My daughter in law (32 yrs old) has a malignant Solitary Fibrous Tumor of the brain which despite 2 rounds of surgeries and 2 rounds of radiation and current chemotherapy spread to the spine and breast. She looks good she is functioning fine for now. Does anyone have any experience and would you like to share please? What is the ffuture holding for her and us as a family. Thank you.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Profile picture for Randy Shields
Randy Shields | @randallshields56 | Oct 28 8:29pm

my tumor in the brain was cancer and had lung cancer, went through radiation and chemo both. still here but god, you will hear me say that often because i believe in prayer. not just at your bedside but prayer groups and as many groups as you can get in and truly believe. that and have something to fight for really use as the reason you want to live. i struggle every day to get up but i do and stretch a little to get my feet under me and thank god somewhere in the start of my day for being on the right side of the ground. PS the tumor was huge . now cancer free last checks and other worries are my seizures. hoping i don't have anymore, I'm leaving it up to god. hope this helps.

REPLY
1 reply
Profile picture for foundryrat743
foundryrat743 | @foundryrat743 | Oct 29 9:22am
In reply to @randallshields56 "my tumor in the brain was cancer and had lung cancer, went through radiation and chemo..." + (show)
Profile picture for Randy Shields @randallshields56

my tumor in the brain was cancer and had lung cancer, went through radiation and chemo both. still here but god, you will hear me say that often because i believe in prayer. not just at your bedside but prayer groups and as many groups as you can get in and truly believe. that and have something to fight for really use as the reason you want to live. i struggle every day to get up but i do and stretch a little to get my feet under me and thank god somewhere in the start of my day for being on the right side of the ground. PS the tumor was huge . now cancer free last checks and other worries are my seizures. hoping i don't have anymore, I'm leaving it up to god. hope this helps.

Jump to this post

@randallshields56 Praying for you! I had an inoperable artery/brain tumor type that was not malignant, but could have easily caused me to have an early death! Prayers by many, are what saved me, and here I am, today, nearly 80-still alive and kicking. That artery mass was pressing in on my brainstem, near the consciousness center, midbrain, when an angiogram found it! The MRI that I had, did not show the malformation! The Neurosurgeon, a world famous Doctor, put me on 2 types of blood pressure/heart pills, that brought my heart beat down to around 50, resting, and kept my blood pressure steady, and even, where it had been, a labile blood pressure! This artery problem of mine was found over 40 years ago! 🙏 Prayer support, by many, has been a great source of inspiration for me! Prayers can work miracles! I will continue to pray for you, and your needs! 🙏

REPLY
Profile picture for Randy Shields
Randy Shields | @randallshields56 | Oct 29 7:21pm

Thank you for the prayers, I keep praying for many on this site and others, have a blessed day and evening 🙏

REPLY
Please sign in or register to post a reply.