1. < Melanoma & Skin Cancer

Malignant melanoma of the choroid in the eye

Posted by twocents @twocents, Nov 1, 2018

My husband was diagnosed with a malignant melanoma in his eye last May. He had a radioactive plate inserted in his eye for four days the beginning of June. The melanoma has a 50% chance of spreading to the lungs, lymph nodes and liver. Has anyone in this group experienced this diagnosis?

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Marlene Eckert | @me1229 | Nov 15, 2023
In reply to @dontteachhate45 "My melanoma spread to my liver. Iwas cancer free for 5 years. I am located in..." + (show)
@dontteachhate45

My melanoma spread to my liver. Iwas cancer free for 5 years. I am located in MN. I am waiting to find out when my appointment is with an oncologist. What questions did you ask?

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I’m only 10 months post radiation and going every 3 months for CT chest, MRI abdomen and blood work. So far, so good.

I wish I knew what questions you should ask other than prognosis. Google search should help you find some info to help you with questions.

My prayers are with you.

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gigivandame | @gigivandame | Nov 14, 2023

I want to follow Cancer support group to be notified about new activity.

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1 reply
dontteachhate45 | @dontteachhate45 | Nov 14, 2023
In reply to @me1229 "On March 16, 2023 I was diagnosed with Ciliary body & choroidal melanoma. I also have..." + (show)
@me1229

On March 16, 2023 I was diagnosed with Ciliary body & choroidal melanoma. I also have a "pigment dusting" over the iris. I am being treated at Mayo in Jacksonville. I was given the option to treat the tumor with plaque radiation and just monitor the dusting. Another option was to remove the entire eye. We chose the radiation at this point. That happened 4/21 and removed 4/25. I sometimes wonder if I should have just removed the eye! So far my CT of the abdomen, chest X-ray and bloodwork does not show metastasis in organs BUT, based on notes in this blog, that in some people it took months to show their cancer spreading.

I meet with my oncologist Wednesday. I want to be prepared to ask the right questions. Can anyone contribute and let me know what questions I should be asking.

Jump to this post

My melanoma spread to my liver. Iwas cancer free for 5 years. I am located in MN. I am waiting to find out when my appointment is with an oncologist. What questions did you ask?

REPLY
2 replies
dontteachhate45 | @dontteachhate45 | Nov 14, 2023
In reply to @colleenyoung "Hi @dontteachhate45, I'm tagging fellow members @twocents @sunflower319 @tiredfarmer @me1229, who also have experience with melonoma..." + (show)
@colleenyoung

Hi @dontteachhate45, I'm tagging fellow members @twocents @sunflower319 @tiredfarmer @me1229, who also have experience with melonoma of the eye that has spread to share their experiences with you.

Don, has the spread to your liver been confirmed? I know you were waiting for the results. What is the plan moving forward?

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It was confirmed last Friday. My doctor said she referred my case to the oncology department.

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dontteachhate45 | @dontteachhate45 | Nov 14, 2023
In reply to @jenniferhunter "@twocents If you haven't seen the Ken Burns documentary about Mayo Clinic, one of the patient..." + (show)
@jenniferhunter

@twocents If you haven't seen the Ken Burns documentary about Mayo Clinic, one of the patient cases in the story is about melanoma of the eye, and that patient did very well. You can see the documentary on the PBS website (I think for a fee) and you can purchase a copy from PBS or Mayo. I thought it was wonderful, and that patient with the eye cancer was pregnant during her treatment. Maybe that would help to see a patient experience this treatment and with a good outcome.

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I saw that! It was a good show.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Nov 14, 2023
In reply to @dontteachhate45 "Hi. I was diagnosed and treated in 2018. I had the radiation patch and was cancer..." + (show)
@dontteachhate45

Hi. I was diagnosed and treated in 2018. I had the radiation patch and was cancer free up until today. It has spread to my liver. Is there any body still on here I can talk to? I have so many questions. I also have Multiple Sclerosis and I am worried about how this may affect it.
Has anyone had it spread to their brain? I'm so scared.

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Hi @dontteachhate45, I'm tagging fellow members @twocents @sunflower319 @tiredfarmer @me1229, who also have experience with melonoma of the eye that has spread to share their experiences with you.

Don, has the spread to your liver been confirmed? I know you were waiting for the results. What is the plan moving forward?

REPLY
1 reply
dontteachhate45 | @dontteachhate45 | Nov 10, 2023

Hi. I was diagnosed and treated in 2018. I had the radiation patch and was cancer free up until today. It has spread to my liver. Is there any body still on here I can talk to? I have so many questions. I also have Multiple Sclerosis and I am worried about how this may affect it.
Has anyone had it spread to their brain? I'm so scared.

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2 replies
dontteachhate45 | @dontteachhate45 | Nov 10, 2023
In reply to @sunflower319 "I had ocular melanoma, that was seven years ago. It was successful, but now it went..." + (show)
@sunflower319

I had ocular melanoma, that was seven years ago. It was successful, but now it went to the liver, I h as d embolization of the tumor and will start immunotherapy. I now it is so hard, to deal with. They say many positive things

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I am waiting to hear what the results are of my byopsy. how did your therapy work for you? I'm so scared.

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Moderator
Colleen Young, Connect Director | @colleenyoung | May 27, 2023
In reply to @me1229 "On March 16, 2023 I was diagnosed with Ciliary body & choroidal melanoma. I also have..." + (show)
@me1229

On March 16, 2023 I was diagnosed with Ciliary body & choroidal melanoma. I also have a "pigment dusting" over the iris. I am being treated at Mayo in Jacksonville. I was given the option to treat the tumor with plaque radiation and just monitor the dusting. Another option was to remove the entire eye. We chose the radiation at this point. That happened 4/21 and removed 4/25. I sometimes wonder if I should have just removed the eye! So far my CT of the abdomen, chest X-ray and bloodwork does not show metastasis in organs BUT, based on notes in this blog, that in some people it took months to show their cancer spreading.

I meet with my oncologist Wednesday. I want to be prepared to ask the right questions. Can anyone contribute and let me know what questions I should be asking.

Jump to this post

@me1229, how did the meeting with your oncologist go earlier this month? What next steps do you decide upon?

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | May 27, 2023
In reply to @tiredfarmer "I had ocular melanoma with gama knife and has also spread to my liver was set..." + (show)
@tiredfarmer

I had ocular melanoma with gama knife and has also spread to my liver was set up to start treatment

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Welcome @tiredfarmer. Have you started treatment? what treatments are you having?

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