Malignant melanoma of the choroid in the eye

I have experienced the same. Recommend keeping up light exercise, such as walking in parks or along your favourite beaches, or practising qigong - much has been written on the latter to reduce anxiety. I watch streaming videos to fill in idle time when I don't feel like exerting myself. All the best, Paul.

The NCI Why Participate in a Clinical Trial might be of interest.
https://www.cancer.gov/research/participate/clinical-trials/why-participate#:~:text=Some%20of%20the%20benefits%20to,to%20people%20outside%20the%20trial

Yes! I had ocular melanoma diagnosed 10/24. Had plaque surgery, plaque stayed in 7 days. In Feb 25 Mets showed up in liver. It was all clear the previous October. I am stage 4 liver cancer now. Having Y90 procedures done now then will take Kimmtrex immunotherapy. A lot has happened in a short period of time.

I have been since April this year 25. was diagnosed with Non Hodgkins Lymphoma in 2016. I am a Vietnam Veteran that was exposed to Agent Orange (67 68 69)

@birthdaycake, this is certainly a significant change for both of you. how are you and your husband adjusting to the loss of his vision?

I'm sorry to hear that. The main advice I can offer is to find out everything you can about your condition so that you understand what is going on and the possibilities before you discuss things with your doctor. The cancer is very rare and your condition is multi-factorial so your doctor won't know everything.
I found "Foods That Fight Cancer: Preventing Cancer Through Diet" very useful to begin with. It is hard to get now but there would be others like it. (Alternately, try "Anna’s Archive" for a free pdf.)
Also, metastases may take up to 35 years to form and then most are found in the liver, so don't stress your liver. Best wishes, Paul.

My husbands eye diagnosed at end of pandemic so appointments were far out as in months and no priority for eye cancer sadly. In a matter if about three months his tumor began to infiltrate the surrounding orbital muscle which made his scheduled proton treatment nul. He ended up getting radiation but lost all vision. His eye also got retinal detachment.

This describes the study. There are no benefits for me, but my hope is this will help with treatment of this cancer for the future. ABOUT THIS STUDY
This effort is to investigate cancers and
utilize many types of data to predict cancer
risk and progression.
Every cancer and every patient is different.
Patient Mosaic aims to understand those
differences.
WHY IS THIS STUDY BEING DONE?
Patient Mosaic is the first-of-its-kind effort
intended to extensively analyze cancers that
will help researchers develop new treatments
and personalize current treatments to each
individual patient for better outcomes.
HOW ARE YOU HELPING SCIENCE?
By choosing to participate in this study, you are helping to:
• Understand cancer better.
• Investigate the biology of your cancer, immunity and
microbiome, so we can develop better treatments.
• Accelerate and expand clinical trials.
Note:
1.You will not be billed or compensated in any form at any
given time during this study.
2.There are no benefits for you in this study and you will not
receive the results of the research testing performed as
part of this study. However, your participation and
findings from this research may benefit future patients.

I had my plate Therapy almost exactly 6 years ago. I had scans every six months and I was fine until the last one. And it’s quite a large cancer of liver. I had no idea. I just didn’t feel the greatest the last month or so. Breaks my heart.

So sorry to hear this. Sending hugs