Malignant melanoma of the choroid in the eye
My husband was diagnosed with a malignant melanoma in his eye last May. He had a radioactive plate inserted in his eye for four days the beginning of June. The melanoma has a 50% chance of spreading to the lungs, lymph nodes and liver. Has anyone in this group experienced this diagnosis?
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@eagleswings: I'm not sure if this is what you're looking for, but I found this on the American Cancer Society Website from last year: https://www.cancer.org/cancer/types/eye-cancer/about/new-research.html
Many of this treatments are studies and/or in development. You may want to consider logging into Melanoma Research Alliance (MRA) or AIM for Melanoma as they frequently offer webinars about emerging/promising interventions. Please remind me if this is something you have or are treating for, or know of someone who is?
I haven't been back to this conversation in a long time. Any updates on new treatments or managing treatments, or hope.
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1 ReactionThank you appreciate it Susan .
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2 Reactions@dan555 I'd like to reach out to welcome you to this forum, Dan, although while I have stage 4 melanoma, I don't personally have experience with this particular type. However, since I see you've not gotten any responses to date, I'm going to provide a link that may be of benefit as your prepare for treatment: https://www.mayoclinic.org/diseases-conditions/eye-melanoma/diagnosis-treatment/drc-20372376
In my previous work as a disablity nurse reviewer, I had dealt with out of work recommendations in conjuction with vocational experts, so please take this a general guide - your oncologist has the final say of course. As far as job requirements, I would imagine your profession is categorized as medium to heavy work as it requires being on your feet more than 50% of the time and lifting in excess of 20-50 lbs. In that case, you'd most likely be advised to be off work for up to 4 weeks. If you have short term disability, it may be worthwhile checking into coverage. Does that help?
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4 ReactionsI was diagnosed wirh the same diagnose 10 dys ago . Melonoma of the eye I have my 1st Petscan on Thursday.
Surgery with the plaque radiation.
What does the recovery look like as far as going back to work ?
I am a chiropractor and job is physical at times .
Dan
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2 ReactionsIt’s been 2 years since I had this done. No changes in all areas. I continue having CT scans and MRI’s. One day at a time.
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6 ReactionsI have experienced the same. Recommend keeping up light exercise, such as walking in parks or along your favourite beaches, or practising qigong - much has been written on the latter to reduce anxiety. I watch streaming videos to fill in idle time when I don't feel like exerting myself. All the best, Paul.
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4 ReactionsThe NCI Why Participate in a Clinical Trial might be of interest.
https://www.cancer.gov/research/participate/clinical-trials/why-participate
Yes! I had ocular melanoma diagnosed 10/24. Had plaque surgery, plaque stayed in 7 days. In Feb 25 Mets showed up in liver. It was all clear the previous October. I am stage 4 liver cancer now. Having Y90 procedures done now then will take Kimmtrex immunotherapy. A lot has happened in a short period of time.
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1 ReactionI have been since April this year 25. was diagnosed with Non Hodgkins Lymphoma in 2016. I am a Vietnam Veteran that was exposed to Agent Orange (67 68 69)
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