Macular hole loose zonules and cone rod dystrophy should I have surger

Posted by dianarobinson @dianarobinson, Oct 2 6:15pm

25 years ago I had orbital reconstructive surgery from trauma macular hole OS
For surgeries, not repairable, have macular hole o d now i'm scared to have surgery because of the orbital repairs and loose zonules should I search for the best redness specialists

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I'm scared to have another surgery.I'm afraid I'll be totally blind.I need the best surgeon I can get.Where can I find that

REPLY

Here’s the ranked short-list for your situation (loose zonules + prior orbital reconstruction + macular hole), with the “why” for each:
1. Wilmer Eye Institute, (Philadelphia ) Johns Hopkins (Baltimore, MD) — World-class retina, complex cataract, and oculoplastics under one roof;
2. Bascom Palmer Eye Institute (Miami, FL) — #1 in the U.S. this year and the safest “if you’ll travel” option for very complex cases. 
3. Cleveland Clinic – Cole Eye Institute (Cleveland, OH) — Excellent coordinated retina+cataract care; nationally ranked in ophthalmology (top-10 tier).
4. Duke Eye Center (Durham, NC) — Top-10 ophthalmology program; strong retina and complex cataract surgery
5. Mayo Clinic (Rochester, MN) — Mayo’s integrated, team-based model is superb.

When you call the hospital’s main number or submit the online form, say:

“I need a complex cataract surgeon experienced with zonular dialysis/loose zonules, coordinated with a retina surgeon for a macular hole, and review by oculoplastics due to prior orbital reconstructive surgery. Please triage me to a combined consult.”

Ask for:
• Same-day cataract + retina consult (or closely sequenced appointments).
• A surgeon who routinely uses capsular tension rings / scleral-sutured or iris-fixated IOLs (for weak zonules).
• Retina surgeon who does macular hole cases weekly (volume matters).

Bring (or upload) ahead of time:
• Most recent OCT macula, biometry (IOL Master/Lenstar), topography, prior orbital CT (if any), and the operative note from the old orbital surgery.

If wait times are long try a different hospital on the list.
I am assuming you live on the east coast. I know these hospitals are a few of the top and the best on the east coast.

REPLY
Profile picture for 56huxley @sjs1

Here’s the ranked short-list for your situation (loose zonules + prior orbital reconstruction + macular hole), with the “why” for each:
1. Wilmer Eye Institute, (Philadelphia ) Johns Hopkins (Baltimore, MD) — World-class retina, complex cataract, and oculoplastics under one roof;
2. Bascom Palmer Eye Institute (Miami, FL) — #1 in the U.S. this year and the safest “if you’ll travel” option for very complex cases. 
3. Cleveland Clinic – Cole Eye Institute (Cleveland, OH) — Excellent coordinated retina+cataract care; nationally ranked in ophthalmology (top-10 tier).
4. Duke Eye Center (Durham, NC) — Top-10 ophthalmology program; strong retina and complex cataract surgery
5. Mayo Clinic (Rochester, MN) — Mayo’s integrated, team-based model is superb.

When you call the hospital’s main number or submit the online form, say:

“I need a complex cataract surgeon experienced with zonular dialysis/loose zonules, coordinated with a retina surgeon for a macular hole, and review by oculoplastics due to prior orbital reconstructive surgery. Please triage me to a combined consult.”

Ask for:
• Same-day cataract + retina consult (or closely sequenced appointments).
• A surgeon who routinely uses capsular tension rings / scleral-sutured or iris-fixated IOLs (for weak zonules).
• Retina surgeon who does macular hole cases weekly (volume matters).

Bring (or upload) ahead of time:
• Most recent OCT macula, biometry (IOL Master/Lenstar), topography, prior orbital CT (if any), and the operative note from the old orbital surgery.

If wait times are long try a different hospital on the list.
I am assuming you live on the east coast. I know these hospitals are a few of the top and the best on the east coast.

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@sjs1 i live on the West Coast, but I'm going to try what you said. It gives me some hope that I won't go totally blind.
The macular hole repair on the left eye took four surgeries in a year and a half.I will never get an interocular.Lens in there again, still in pain.So i'm desperate to get the right eye fixed.I have money and insurance.Thank you so much for the reply

REPLY
Profile picture for dianarobinson @dianarobinson

@sjs1 i live on the West Coast, but I'm going to try what you said. It gives me some hope that I won't go totally blind.
The macular hole repair on the left eye took four surgeries in a year and a half.I will never get an interocular.Lens in there again, still in pain.So i'm desperate to get the right eye fixed.I have money and insurance.Thank you so much for the reply

Jump to this post

@dianarobinson
You’ve already been through so much, and the fact you endured four surgeries on your left eye explains your fear. What’s most important now is that your next step is triaged correctly — not just a routine cataract or retina slot. You need a team approach:
• a complex cataract surgeon (for the loose zonules),
• a retina surgeon (for the macular hole), and
• oculoplastics if needed (because of your past orbital repair).

When you contact a major eye center, tell them clearly that this is a combined case requiring triage to multiple subspecialists. That way you don’t get bounced around, and the surgeons can plan together from the start.

You have resources and determination — the right triage will give you the best chance to move forward safely.
Good Luck and blessings

REPLY
Profile picture for 56huxley @sjs1

@dianarobinson
You’ve already been through so much, and the fact you endured four surgeries on your left eye explains your fear. What’s most important now is that your next step is triaged correctly — not just a routine cataract or retina slot. You need a team approach:
• a complex cataract surgeon (for the loose zonules),
• a retina surgeon (for the macular hole), and
• oculoplastics if needed (because of your past orbital repair).

When you contact a major eye center, tell them clearly that this is a combined case requiring triage to multiple subspecialists. That way you don’t get bounced around, and the surgeons can plan together from the start.

You have resources and determination — the right triage will give you the best chance to move forward safely.
Good Luck and blessings

Jump to this post

@sjs1 thank you. You have no idea what your reply means to me.
It gives me hope and the direction to Go
Thank you so much

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