Macular Degeneration and Blepharospasm

I've heard that many people are treated with eye injections for macular degeneration. Sometimes it helps sometimes not.

What did your retinal specialist tell you? Yes depending if you have wet or dry you can get injections that stops or delay you losing central vision. I have one eye dry and the other wet. I get injections for the wet and continue taking my eye vitamins and check my Amsler grid every few days for wavy lines. I do not have BEB but it must be very frustrating with all you are going through.

Very interesting. I never went to see a retinal specialist. I guess I should have. You just told me more than I actually knew about it. I was told to make an appointment with one, but they never told me why. Anyway, I will look into that. Thank you.

@tillymack Thank you for that additional reinforcement. I will be looking into that.

I received 2 injections in my right eye for Macular Degeneration after having it watched for years for a change to wet from dry. Twenty four hours following the recent injections on June 8th. 2026, I had a stroke affecting my entire left side. They told me it was deep in the pineal area of my brain. I spent four days in the hospital and I’m still receiving home health. It has steadily improved since then but I have parenthesia on my left side as well as weakness and coordination difficulties. I am an occupational therapist and know the various effects of CVAs and I had treated them for 30 years. At this point I do not plan to continue eye injections. I have read the literature about the stroke connection and why it is or is not a continued risk but personally weighing the specter of another stroke against my eye deterioration I come up deciding not to do anything possibly related to experiencing another stroke. I well know it could be far more life changing than even blindness. I have wonderful grandchildren and a great grandchild who I want to see grow up and a husband and adult children I adore. I was continuing to see patients in home health at the time of the stroke. I may not return to work. With that I’m not completely resolved. I’m 77 years old and want to continue to be as active and creative as I am now for a couple of decades or whatever is naturally related to my lifespan. I’m a writer and visual artist with much left to do. I would appreciate other comments from those of you I may have this in common with. I doubt that the true number of people with this unfortunate phenomenon is well known. M

I'm sorry you experienced a stroke after the eye injection. To confirm, you had a stroke after the second injection but not the first? Was either injection helpful in improving your vision or does it take consecutive injections to take effect?

@blackwing
What was the medication used?

WOW! THAT IS VERY GOOD TO KNOW. THIS WILL BE THE START OF MY RESEARCH INTO THIS KIND OF TREATMENT. I AGREE THAT THE RISK OF A STROKE MAY NOT BE WORTH TRYING SOMETHING LIKE THIS THAT MAY, OR MAY NOT WORK. THANK YOU FOR SHARING THIS.

There are several Blepharospasm support groups on Facebook. They're useful. One is Benign Essential Blepharospasm Support Group.

Regards,
Randy

THANK YOU FOR LETTING ME KNOW ABOUT THE BEB GROUPS. I WILL LOOK INTO THAT.