MAC AND VALLEY FEVER

Posted by scratssun @scratssun, Jan 18 9:51pm

I was diagnosed with MAC (bacterial infection) & Valley Fever (fungal infection) in June 2023. I agreed to take Fluconazole to attempt to cure the Valley Fever but was beyond scared to begin the 3 med treatment at the same time for MAC. However in December 2023 my infectious disease doctor said I needed to being the MAC meds Azythromycine 500mg, Rifampin 600mg & Ethambutol 1200 mg three times each week. He indicated I would not like the results as the disease progressed if I did not begin MAC treatment. Having read about side effects, with tears in my eyes and very scared, I began taking the meds December 5 along with the Fluconazole. I spent a lot of time worrying and am happy to say I have had no side effects! The sporadic cough I had is gone, my energy is high (I swim, walk, play pickleball, and bike. ) My weight is stable at 100 lbs. I read the MAC updates daily and am very appreciate of all those who contribute and are helping me stay calm.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

cwal | @cwal | Jan 19 6:57am

Hope you continue to do well! Never heard of Valley Fever. Did it clear?

Rick | @rstel7272 | Jan 19 9:30am

I too,tolerate the big 3 very well. There are a lot of horror stories on these blogs. I sometimes find it hard to believe someone would take a bloggers advise over their Doctor. Finding the right Doctor is the challenge. I value the shared experiences on these blogs but cringe when someone says not to something a Dr has ordered. This occurs more on another blog than this one.

scratssun | @scratssun | Jan 20 12:44pm

In reply to @cwal "Hope you continue to do well! Never heard of Valley Fever. Did it clear?" + (show)

Thank you. Valley Fever is a fungal infection in the lungs commly found in people living in AZ, CA, NV,NM, TX etc. The fungi lives in the soil of dry area. We have hiked extensively and been off roaders for several years which may have been the cause of this problem. Although I have now been on the Fluconazole for 8 months, VF still is present. This is a concern as I've added the big 3 for MAC. Thankful that I have a faith in my infectious disease dr. to monitor the meds.