Lyrica - Looking for Patient Experiences

Posted by iceblue @iceblue, Mar 12, 2020

I saw my doctor today, and was reminded again how lucky I was to (recently) land on his patient list. The visit was all about the side effects I had recently developed with Gabapentin – prescribed to treat SFN. He was quite concerned, and has switched me over to Lyrica effective immediately. I've done some research and it appears to have a shorter list of side effects, but I would be interested to know what people's actual experiences were/are – both good and bad.

@tigreyes2004

I take 500 mg of Gabapentin & I do the same thing with sentences. I forget what I am about to say & I have to think about it & I feel like a fool. I'm on a very low dose of Gabapentin. My dr. says this pill slows the brain down so I guess that is why we react like that. I would like to know more too so keep us posted. Best of luck.

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Thank you for your post. I have been a bit forgetful but I usually attribute it to my advanced age. Maybe the high doses of gabapentin are the root cause. I usually remember my conversations but when it comes to remembering a person’s name, it takes me a minute or two and sometimes I can only remember the surname. Hmmm…. I need the gabapentin more than I need my memory of everyone’s name. But maybe it is more the drug and not early dementia that is causing my problem.

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@iceblue

DAY ONE UPDATE: I took my first 50 mg pill last night at 9 PM – so it's been barely 12 hours.

I did not get tired enough to go to bed until midnight. I slept better than I have been sleeping on the Gabapentin – which means no nightmares, no sense of doom, no anxiety attacks. There was also no pain throughout the night (yipppeeee!). I still woke up 2 or 3 times, but didn't have to talk myself into a sense of calm.

The most amazing thing was that when I got up this morning, I was able to walk without feeling like my feet were riddled with arthritis! I got out of bed and walked – not painfully hobbled – to the bathroom! I honestly don't know whether this type of pain is neuropathy, arthritis, or something else – all I know is that I didn't feel it this morning and if this drug takes away that pain – BONUS.

I still have some burning pain this morning – but if things are still going well on Day 3, the doctor wants me to increase my dosage by 25 mg (total 75 mg) and see how that goes. I will see him again in 2 weeks for a review.

I realize this may be a one-off experience, but I cannot tell you how excited I am at this early stage! I'm looking forward to seeing whether this will extend over the longer term 🙂

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Yayyy for you @iceblue! 😊 Fingers crossed.

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@iceblue

DAY ONE UPDATE: I took my first 50 mg pill last night at 9 PM – so it's been barely 12 hours.

I did not get tired enough to go to bed until midnight. I slept better than I have been sleeping on the Gabapentin – which means no nightmares, no sense of doom, no anxiety attacks. There was also no pain throughout the night (yipppeeee!). I still woke up 2 or 3 times, but didn't have to talk myself into a sense of calm.

The most amazing thing was that when I got up this morning, I was able to walk without feeling like my feet were riddled with arthritis! I got out of bed and walked – not painfully hobbled – to the bathroom! I honestly don't know whether this type of pain is neuropathy, arthritis, or something else – all I know is that I didn't feel it this morning and if this drug takes away that pain – BONUS.

I still have some burning pain this morning – but if things are still going well on Day 3, the doctor wants me to increase my dosage by 25 mg (total 75 mg) and see how that goes. I will see him again in 2 weeks for a review.

I realize this may be a one-off experience, but I cannot tell you how excited I am at this early stage! I'm looking forward to seeing whether this will extend over the longer term 🙂

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that is great news Iceblue, for now I think I will continue the gaba, but good to know your positive experience w/Lyrica. I take it at 9:30 and usually turn the lights out at 11:30. I do experience crazy sometimes bad dreams and often anxiety plus forgetfulness and off/on blurry vision, impatience and lack of energy. But, on 400mg. 1xday at bedtime I can hold off taking it again until bedtime and I sometimes use a CBD salve on my hands before bed. For some reason I have very little pain during the day. Fingers crossed for both of us. Helen

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@helennicola

that is great news Iceblue, for now I think I will continue the gaba, but good to know your positive experience w/Lyrica. I take it at 9:30 and usually turn the lights out at 11:30. I do experience crazy sometimes bad dreams and often anxiety plus forgetfulness and off/on blurry vision, impatience and lack of energy. But, on 400mg. 1xday at bedtime I can hold off taking it again until bedtime and I sometimes use a CBD salve on my hands before bed. For some reason I have very little pain during the day. Fingers crossed for both of us. Helen

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@helennicola – While I am really pleased with these results, I will wait and see if the good results continue before I get too excited 😉

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Even at high doses, GABA had no noticeable effect and Cymbalta caused serious memory problems. Lyrica helps greatly. If I am late taking it, I suffer—no exaggeration. With numb feet and Lyrica, I do feel dizzy often. This gives very good relief when taken with my Tramadol. I have tried several pain meds that almost completely eliminated pain, but as you would expect, they were much more dangerous and addicting. Despite daily pain and some rough ones, I am trying to stay at this level of relief. Lyrica makes that possible.

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@dckuke

Even at high doses, GABA had no noticeable effect and Cymbalta caused serious memory problems. Lyrica helps greatly. If I am late taking it, I suffer—no exaggeration. With numb feet and Lyrica, I do feel dizzy often. This gives very good relief when taken with my Tramadol. I have tried several pain meds that almost completely eliminated pain, but as you would expect, they were much more dangerous and addicting. Despite daily pain and some rough ones, I am trying to stay at this level of relief. Lyrica makes that possible.

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@dcduke, glad something works somewhat for you. Have you tried CBD at all? Gabapentin caused dizziness and vertigo (not the same) for me for a year in which I was seeing a P/T specialist. It stopped on its own and have not had it come back so far. Other side effects have come and gone over time, now just dealing with the SFN.

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@dckuke

Even at high doses, GABA had no noticeable effect and Cymbalta caused serious memory problems. Lyrica helps greatly. If I am late taking it, I suffer—no exaggeration. With numb feet and Lyrica, I do feel dizzy often. This gives very good relief when taken with my Tramadol. I have tried several pain meds that almost completely eliminated pain, but as you would expect, they were much more dangerous and addicting. Despite daily pain and some rough ones, I am trying to stay at this level of relief. Lyrica makes that possible.

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I have been on lyrica for 3 years and I swear by it ! Nothing ealse has worked for me, as you know the pain never completely goes away,but taken lyrica has saved my life and I was able to go back to work full time!, me and my husband are raising our 9 yr old grandson, and if I hadn't went back to work we would've lost our house and been homeless! Thank you God and my doctor for lyrica! Amen!

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@helennicola

@dcduke, glad something works somewhat for you. Have you tried CBD at all? Gabapentin caused dizziness and vertigo (not the same) for me for a year in which I was seeing a P/T specialist. It stopped on its own and have not had it come back so far. Other side effects have come and gone over time, now just dealing with the SFN.

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Yes, CBD helps me cope with pain. I take CBD sublingually–one type fast action and longer lasts longer. I have the awful pricking, burning sometimes in fingers, thighs to toes, and. the only thing I have found that helps Is CBD ointment. I have tried several brands, but they often add herbs that irritate the skin. I have settled on Mitchell's Ointment, which stops the worst of the burning almost immediately and last 6 hours or more. One tip. Try to put on a couple hours before socks and shoes–cuts down some friction. If you are not as sensitive I recommend Lazarus Ointment that is cheaper and 50% more CBD–and you may qualify for discounts. Good Luck.

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@dckuke

Yes, CBD helps me cope with pain. I take CBD sublingually–one type fast action and longer lasts longer. I have the awful pricking, burning sometimes in fingers, thighs to toes, and. the only thing I have found that helps Is CBD ointment. I have tried several brands, but they often add herbs that irritate the skin. I have settled on Mitchell's Ointment, which stops the worst of the burning almost immediately and last 6 hours or more. One tip. Try to put on a couple hours before socks and shoes–cuts down some friction. If you are not as sensitive I recommend Lazarus Ointment that is cheaper and 50% more CBD–and you may qualify for discounts. Good Luck.

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Where do I get that?

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Online for all of these: Mitchell's Medicinals' Ointment, Lazarus Naturals, which offers substantial discounts for Vets and those who have difficulty affording it. I also use Hemplucid Water Soluble sublingual liquid that works almost immediately and bypasses digestive system and liver and quickly moves to the blood system. Only vaping works faster, but I do not trust its safety with COPD–even water soluble. Best of luck. If you are using full spectrum CBD sublingually from any of the well-known national brands.

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DAY FIVE UPDATE:

The pain in my feet was reduced by about 75% starting the day after I started taking Lyrica. I still top-up with OTC meds, but require much less. I am extremely happy to report that my nightmares and other terrible night time experiences disappeared the very first night and have not returned. My ability to think clearly seems to be improved.

Completely unexpected: I get a specific pain in my feet that has made me believe I have arthritis in my feet – but maybe it's SFN. Anyway – the morning after my first Lyrica dosage I got out of bed and walked, not hobbled, to the bathroom. This is HUGE!!! This pain happens any time I stay still for periods of time, and while it has not completely disappeared throughout the day – it is much improved.

In addition, I noticed that the rest of my body just feels 'better'. In fact, I had not fully realized how much my body hurt, how stiff I felt. I thought I was experiencing 'getting old'. I told my Hubby that I felt like the Tin Man who didn't know how rusty he was until someone oiled his joints! Also a miracle is that the relief from that rusty, all over body pain lifted a dark cloud that I also didn't really appreciate the weight of. This leaves me to wonder: Was I a bit depressed?

Tonight I increase my dosage to 75 mg/day. I'm praying that dosage deals with the last bit of pain and does not introduce any unacceptable side effects. Wish me luck!

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Wish you the best—I still have serious pain- but without Lyrica, it is unmanageable. Good lick.

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