Lymphedema in left foot after endometrial surgery: What helps?

Sorry you got lymphedema. I also have it after having surgery for metastatic endometrial cancer. I never found a doctor who treats lymphedema. You have to find a physical therapist because they are the ones who treat it. I was going to one and they put my leg into a graduated compression machine for about a half hour or more. I eventually asked the PT if I could buy my own machine and she said some insurance companies will pay for it. Mine did and so I discontinued going to the PT. I used it daily at home for a few years but now I only use it when my leg swells a lot and it's very uncomfortable with tingling, numbness, etc. My primary care doctor prescribed Gabapentin to take before sleep which also helps. It does make me drowsy so I don't take it in the daytime.
I also use compression socks I get from Amazon...not as tight as Jobs. Try elevating your legs as often as possible as this will help your lymphatic fluid to move from your feet. I'm not sure where you're located but google and ask your PT if they know of any support groups for you to join where you can get more information. Good luck to you.

@emine When did you have surgery? How long have you had lymphedema and what else have you tried besides the Jobs compression socks?

Your discomfort and pain due to lymphedema sounds terrible. I personally don't have experience with lymphedema just a few lymph nodes were removed to look for spread to the lymph nodes during my hysterectomy for endometrial cancer. Since there was no cancer in those few lymph nodes the rest of my lymph nodes were left intact.

@chrissiebee provided you with some good suggestions. In order to get your insurance to pay for physical therapy you usually need a referral from your doctor. I know that there are massage therapists who specialize in lymphedema but I don't know how well this works. If this were me I would try to physical therapy first and also find the compression socks that work the best for me.

thanks for your share, at my country, one doctor operates for lymphedema but my doctors say, dont. i use my compression for 5 days, i get use to. i went to pt but at my country it is so expensive, but i learn have to do mld and bandaging.how long has it been since the operatinon? any new metastas for organs, bones? do u have kemo' and radiotherapy?

I'm glad you found some help. I had metastatic endometrial cancer that grew on my outer colon and hip bone, it was a mass the size of a tennis ball, back in 2002. It was very dangerous for me. The surgeon removed 12 inches of my colon but the hip had a lot of cancer because he could only scrape off some of it. That's why I had to have very strong and long radiation on that entire area. I did not have chemo because back then I was told the chemo for that type of cancer was not very good and only extended life by a matter of months, if at all, so it wasn't worth it. My chance of surviving more than five years was very low. I never got another metastasis after that. I did have much prayer from everyone I knew. It's been over 20 years ago! I did get bladder cancer a few years ago and was
told it was caused by an accumulation of all the radiation I had. It was caught early by my seeing much blood in my urine and going to the doctor immediately. I had surgery to remove the cancer and one year of chemo directly onto the bladder. That was almost two years ago and I'm still doing fine, no new bladder cancer. I hope this answers your questions. Feel free to ask any more if you have any.

u can translate to turkish, samimi yazınız için çok teşekkür ediyorum.ben hem.kemoterapi hem de kemoterapiyle eş zamanlı radyoterapi aldım. zor günlerdi ama 6 ayı geride bıraktım. doktor en başında yaşama şansıma %65 dedi. her 3 ayda 1 kez kapsamlı mr, akciğer bt ve kan testlerim yapılıyor. her 3 ayda bir jinekolog onkolog, medikal onkolog ve radyasyon onkoloğu muaynem oluyor. şu an 46 yaşındayım, bana gerçekten umut verdiniz.çok teşekkür ederim.

@emine
I used Google translate for Turkish to English for others to read. I hope this is accurate and it is OK with you that I did this:

"Thank you very much for your sincere article. I received both chemotherapy and radiotherapy simultaneously with chemotherapy. These were difficult days, but I left 6 months behind. The doctor said at the beginning that my chance of survival was 65%. I have comprehensive MRI, lung CT and blood tests done once every 3 months. Every 3 months, a gynecologist, oncologist, medical oncologist and radiation oncologist are examined. I am 46 years old now, you really gave me hope. Thank you very much."

Thank you for letting me know you did receive some hope. That's the reason a write on this MayoClinic blog. When I survived my dangerous metastasis, my oncologist called me her
Miracle Patient whenever she saw me. I am so thankful for my good results and want others who are undergoing cancer treatment to know that there are so many treatments these days that can save you. In addition to the 2 endometrial cancers and recent bladder cancer, I also had breast cancer 8 months after my first diagnosis of endometrial cancer. I was so fortunate that I was going for regular mammograms because it was caught very early and I only had radiation therapy for it. No chemotherapy because it was so small and the lymph nodes were not involved. That was back in 1997 and I never had it reoccur. Praise God for that! So please know that there is hope for you, for sure! I'll send healing thoughts and prayers your way, dear Emine.