1. < Thyroid Cancer

Papillary thyroid cancer with lymph node involvement

Posted by camdynsmom @camdynsmom, May 7 8:19pm

Hi! My 18 year old daughter was recently diagnosed with papillary thyroid cancer. She had a TT and a bilateral central neck dissection last week. Her pathology report came back today and 18 out of 38 lymph nodes were malignant. We see an endo on Thursday to discuss her next step in treatment and see her surgeon for a post-op on Monday. Just looking for some reassurance/info. I feel like 18/38 is a substantial amount of malignant lymph nodes.

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livi05 | @livi05 | May 8 10:36am

So sorry you and your daughter are going through this. I was 33 when I was diagnosed and I had 3 cancerous nodules on my thyroid and 7/11 cancerous lymph nodes. Depending on what her endocrinologist suggests, she may have to do the Radioactive Iodine Therapy. I am just finishing mine and it was hard, but it’s a very effective treatment. One of my friends was 19 when she was diagnosed with papillary thyroid cancer and was able to have 3 successful pregnancies in her 20s. I know it’s scary and it seems like a lot, but they have come a long way in how they treat thyroid cancer and it is very effective. I hope that helps relieve a bit of stress and worry.

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mabfp3 | @mabfp3 | May 8 1:07pm

I am so sorry to read this. I will keep you and her in my prayers.

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camdynsmom | @camdynsmom | May 8 7:38pm
In reply to @livi05 "So sorry you and your daughter are going through this. I was 33 when I was..." + (show)
@livi05

So sorry you and your daughter are going through this. I was 33 when I was diagnosed and I had 3 cancerous nodules on my thyroid and 7/11 cancerous lymph nodes. Depending on what her endocrinologist suggests, she may have to do the Radioactive Iodine Therapy. I am just finishing mine and it was hard, but it’s a very effective treatment. One of my friends was 19 when she was diagnosed with papillary thyroid cancer and was able to have 3 successful pregnancies in her 20s. I know it’s scary and it seems like a lot, but they have come a long way in how they treat thyroid cancer and it is very effective. I hope that helps relieve a bit of stress and worry.

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Thank you! I always appreciate hearing the “success” stories of people who were diagnosed young. I know they say it grows slowly and rarely spreads beyond the lymph nodes, but I have myself convinced it has spread further, because of the high amount of malignant lymph nodes. I have done myself a disservice by searching the web for information. Too much info isn’t always a good thing.

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camdynsmom | @camdynsmom | May 8 7:39pm
In reply to @mabfp3 "I am so sorry to read this. I will keep you and her in my prayers." + (show)
@mabfp3

I am so sorry to read this. I will keep you and her in my prayers.

Jump to this post

Thank you!

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sandy8043 | @sandy8043 | May 15 11:56am

I'm 67 and recently had my thyroid removed due to cancer. While relating my woes to a friend my age she said, "You'll be fine. I haven't had a thyroid in 40 years!" I had no idea she had had cancer long ago. She had two wonderful, now grown kids and has had a wonderful and medically uneventful life. Of all of my friends she is by far the healthiest! Hope this helps.

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Moderator
Colleen Young, Connect Director | @colleenyoung | May 17 3:25pm

@camdynsmom, has your daughter met her doctor? What treatment options were suggested? How you YOU doing?

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