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Papillary thyroid cancer with lymph node involvement

Posted by camdynsmom @camdynsmom, May 7 8:19pm

Hi! My 18 year old daughter was recently diagnosed with papillary thyroid cancer. She had a TT and a bilateral central neck dissection last week. Her pathology report came back today and 18 out of 38 lymph nodes were malignant. We see an endo on Thursday to discuss her next step in treatment and see her surgeon for a post-op on Monday. Just looking for some reassurance/info. I feel like 18/38 is a substantial amount of malignant lymph nodes.

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Colleen Young, Connect Director | @colleenyoung | Aug 2 11:53am
In reply to @w3bjamn "Hi! So here's my update - I got ahold of my current ENT, who told me..." + (show)
@w3bjamn

Hi! So here's my update - I got ahold of my current ENT, who told me that I will have to have 50-60 lymph nodes removed on the right side of my neck. He referred me to a specialist at a top specialist to have a full Thyroidectomy. I reminded him of my enlarged axillary lymph nodes, which he them ordered a mammogram, chest CT and then a referral to a General surgeon for consultation to results of CT. Everything he sent out has been STAT.
So question for everyone is, when you get diagnosed with Papillary thyroid cancer, do they move "fast." It went from hearing crickets, to now we need to move faster.. asap asap.
Also, when someone has had some lymph nodes removed on their neck, I mean 50-60 sounds like a ton!!! Is that, uh more than usual?
Please, be blunt, don't hold back.
I'm having 4 appointments in 6 days, 3 different doctors and one CT. While I know this isn't the Anaplastic cancer, it still feels "rushed"
- Ash

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@w3bjamn, I'm glad things are moving. Having 4 appointments in 6 days is a whirlwind, but you shouldn't feel rushed. Make sure you ask questions. And if the responses raise more questions, keep asking until you have clarity of your options to make the choices that are best for you.

Here's a list of additional discussions about thyroid cancer and neck dissection: https://connect.mayoclinic.org/group/thyroid-cancer/?search=neck#discussion-listview

The appointments I assume are to get clarity of the diagnosis and next steps. Have you considered getting a second opinion?

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1 reply
w3 | @w3bjamn | Aug 2 1:04pm
In reply to @colleenyoung "@w3bjamn, I'm glad things are moving. Having 4 appointments in 6 days is a whirlwind, but..." + (show)
@colleenyoung

@w3bjamn, I'm glad things are moving. Having 4 appointments in 6 days is a whirlwind, but you shouldn't feel rushed. Make sure you ask questions. And if the responses raise more questions, keep asking until you have clarity of your options to make the choices that are best for you.

Here's a list of additional discussions about thyroid cancer and neck dissection: https://connect.mayoclinic.org/group/thyroid-cancer/?search=neck#discussion-listview

The appointments I assume are to get clarity of the diagnosis and next steps. Have you considered getting a second opinion?

Jump to this post

Unfortunately I do feel rushed. Is it normal to have so many appointments so quickly?
I meeting my new ENT today. My mammo came back abnormal, and visual LEFT lymph node present. (Everything has been happening on Right. And radiologist requested a 2nd one done. My current ENT said no, because I was having a CT done in a few days.

I did my CT yesterday, no axillary lymph nodes, anywhere present. I have issues breathing, and was told it would show up on CT, and nothing..
I'm feeling like I either got a bad scan, bad read, everything "miraculously" went away (axillary wise).

When going through past paperwork, I noticed that in the beginning, no thyroid nodules were present. A month in half later, left side had a Ti-Rad 3 and right side had Ti-Rad5. Is it normal for nodules to grow that fast? I'm not assuming they are cancerous, just growth in general.
I do want a 2nd opinion. I picked up all my scans, imaging and plan getting answers. I'm just not satisfied with the ones I've been given.
Thoughts?

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