I would like to hear from anyone who has had a lung transplant

Posted by ktgirl @ktgirl, May 29 7:47am

I would like to hear from anyone who has had a lung transplant. Would you do it again? I know it's a very difficult procedure and I'm not sure if I want to go through with it or not. I haven't signed up for anything yet but will talk to my pulmonologist next week at Mayo. Any information would be appreciated.
Thanks

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@ktgirl

That's good to hear things went well for you. I have a hard time changing doctors. I always feel like I'm offending the doctor I have. I know it's stupid to feel like that. I need to do something about all this. Can you tell me which doctor you saw at Mayo?

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@ktgirl, it is important to have confidence in the care you are receiving and to have good rapport with your team. You are not offending anyone if you address this with the transplant department at Mayo Clinic. You can talk about it with the doctor and let them know how you feel or discuss it with the lead physician/dpartment head.

Another option is to ask for help from the Office of Patient Experience. They can help guide you. Here is the contact info:
Mayo Clinic Office of Patient Experience
Phone: 844-544-0036 (toll free)
Email: opx@mayo.edu
https://www.mayoclinic.org/about-mayo-clinic/patient-experience

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