What to do? Lung nodules with End Stage Cirrhosis

Posted by jeanne5009 @jeanne5009, Feb 10, 2022

Stage 4 cirrhosis MELD 8 for 6 yrs. Recently, lung nodule tripled in size 1 cm. How will this affect my status? Currently being watched by Mayo every 6 mo. Waiting for PET scan. What do I do?

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Hi! Yes please hang on for the ride! No lung nodules til this one. It went from a 10x 4 mm ill defined opacity in May 2021 to 1x1 cm with the solid component of 2.3 to 7.7 in 2/22. No mention of ground glass.
PET impression says " Mild FDG uptake in relation to the 1.8 cm nodular opacity seen in the lingular region of the left upper lobe. Slightly greater than the mediastinal background activity of 2.5. Could be inflammatory. No significant change since recent CT chest. Low grade malignancy should also be considered. Follow up with CT chest in 8 to 10 weeks and if it persists, biopsy is advised for tissue diagnosis."
Just noticed that the imaging co that did 3 CTs must have wrongly identified the the" left lower lobe" when the other reports and the PET indicate left upper lobe.....just to add to my confusion! I better have them go back and verify and send me a corrected report.
Hoping to hear from my Mayo docs today.
And if all this isn't enough....my Facebook account was hacked and I have had to change passwords and sign in to everything. So frustrating.
Lung Drs should all have the disc today so I will wait.
What are your thoughts?

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@jeanne5009

Hi! Yes please hang on for the ride! No lung nodules til this one. It went from a 10x 4 mm ill defined opacity in May 2021 to 1x1 cm with the solid component of 2.3 to 7.7 in 2/22. No mention of ground glass.
PET impression says " Mild FDG uptake in relation to the 1.8 cm nodular opacity seen in the lingular region of the left upper lobe. Slightly greater than the mediastinal background activity of 2.5. Could be inflammatory. No significant change since recent CT chest. Low grade malignancy should also be considered. Follow up with CT chest in 8 to 10 weeks and if it persists, biopsy is advised for tissue diagnosis."
Just noticed that the imaging co that did 3 CTs must have wrongly identified the the" left lower lobe" when the other reports and the PET indicate left upper lobe.....just to add to my confusion! I better have them go back and verify and send me a corrected report.
Hoping to hear from my Mayo docs today.
And if all this isn't enough....my Facebook account was hacked and I have had to change passwords and sign in to everything. So frustrating.
Lung Drs should all have the disc today so I will wait.
What are your thoughts?

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I've also had the experience of having the wrong lobe called out, lol. It is confusing. I use MGH in Boston and they don't want me using any non-affiliated hospitals for my scans. Not all scanning machines are created equal.

Are there different types of CT scan machines?
There are several different types of ct machines depending on the number of slices. Multi-slice scanners come in 4, 6, 8, 16, 32, 40, and 64 slice configurations. Additional slices enhance diagnostic capabilities and broaden the range of applications, especially if the facility will be performing cardiac studies.

I would wait until you hear from your Drs. to pass any judgments. So far I think that the recommendations are accurate in protocols, at least.

I'll be looking forward to hearing back what they say.

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Yes, my PCP recommended that facility and they were good but you never know how good the radiologists who read.... I also looked into the PET scan co. I had no liver or pulmonologist involved then so I went with the one who could do it fastest. No easy answers.

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