@nursed2075- Welcome to Mayo Connect. Yes, we have a lung cancer group. I am the mentor for lung cancer and health. I do have stage 4 lung cancer. Many people in the lung cancer group do. I'm horrible on my cell phone otherwise I'd put the link here. You can access it the same way you found this group.
Why are you interested in stage 4 lung cancer patients? Have you been diagnosed with it?
I was diagnosed in June 2024 with stage 4 non-small cell adenocarcinoma that metastasized to my pelvic and scapular bones. I had three rounds of chemo and immunotherapy (Keytruda). Doc dropped the chemo but I’m getting Keytruda every six weeks. No bad side effects yet and my body’s reaction to Keytruda has been “amazing,” apparently because of a protein (PL-01) in my tumor that responds very well to treatment.
Hi @jolloyd51 , Welcome to Mayo Connect. Sorry that you had such a hard year in 2024. I'm sure you'll remember it like no other that you've faced. It certainly sounds like you're headed in the right direction. The treatments that we have access to today are amazing. We have to feel fortunate for that! I take a targeted therapy (pills) every day.
Are you tolerating the Keytruda ok? Did your doctors give you anything additional for the bone metastases?
Hi @nanagg , Welcome! I'm sorry that you're facing this disease. It's a tough road, but hopefully it's not too bumpy for you. What type of lung cancer do you have, and are you stage 4? How are you tolerating the chemo?
Hi @jolloyd51 , Welcome to Mayo Connect. Sorry that you had such a hard year in 2024. I'm sure you'll remember it like no other that you've faced. It certainly sounds like you're headed in the right direction. The treatments that we have access to today are amazing. We have to feel fortunate for that! I take a targeted therapy (pills) every day.
Are you tolerating the Keytruda ok? Did your doctors give you anything additional for the bone metastases?
So far I am tolerating the Keytruda well; however, I am being monitored carefully for some “ground glass opacities” that showed up in the upper lobes of my lungs in my last PET scan. Since I’m not having any symptoms (shortness of breath, coughing, low blood oxygen level), they gave me another dose last week but I’ll be getting a scan soon to see if those opaque spots are growing or resolving.
For the bone metasteses, I get a Zometa infusion every four weeks for two years. The cancer in my bones was not visible on my last scan.
Hi @jolloyd51 , Welcome to Mayo Connect. Sorry that you had such a hard year in 2024. I'm sure you'll remember it like no other that you've faced. It certainly sounds like you're headed in the right direction. The treatments that we have access to today are amazing. We have to feel fortunate for that! I take a targeted therapy (pills) every day.
Are you tolerating the Keytruda ok? Did your doctors give you anything additional for the bone metastases?
So far I am tolerating the Keytruda well. I am tired often, but I don't feel sick or have any pain. My last scan showed some "ground glass opacitities" in both lungs, which could be something serious, and it could be caused by Keytruda, but we are needing more scans to be sure. I'm not having any symptoms from the GGO.
For the bone metastases, I am taking thea bone strengthener Zometa as an infusion every four weeks. Yes, 2024 was an interesting year.
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I’m getting ready to do my 3rd chemo treatment
I was diagnosed in June 2024 with stage 4 non-small cell adenocarcinoma that metastasized to my pelvic and scapular bones. I had three rounds of chemo and immunotherapy (Keytruda). Doc dropped the chemo but I’m getting Keytruda every six weeks. No bad side effects yet and my body’s reaction to Keytruda has been “amazing,” apparently because of a protein (PL-01) in my tumor that responds very well to treatment.
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3 ReactionsHi @jolloyd51 , Welcome to Mayo Connect. Sorry that you had such a hard year in 2024. I'm sure you'll remember it like no other that you've faced. It certainly sounds like you're headed in the right direction. The treatments that we have access to today are amazing. We have to feel fortunate for that! I take a targeted therapy (pills) every day.
Are you tolerating the Keytruda ok? Did your doctors give you anything additional for the bone metastases?
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Like -
Helpful -
Hug
1 ReactionHi @nanagg , Welcome! I'm sorry that you're facing this disease. It's a tough road, but hopefully it's not too bumpy for you. What type of lung cancer do you have, and are you stage 4? How are you tolerating the chemo?
So far I am tolerating the Keytruda well; however, I am being monitored carefully for some “ground glass opacities” that showed up in the upper lobes of my lungs in my last PET scan. Since I’m not having any symptoms (shortness of breath, coughing, low blood oxygen level), they gave me another dose last week but I’ll be getting a scan soon to see if those opaque spots are growing or resolving.
For the bone metasteses, I get a Zometa infusion every four weeks for two years. The cancer in my bones was not visible on my last scan.
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Like -
Helpful -
Hug
2 ReactionsSo far I am tolerating the Keytruda well. I am tired often, but I don't feel sick or have any pain. My last scan showed some "ground glass opacitities" in both lungs, which could be something serious, and it could be caused by Keytruda, but we are needing more scans to be sure. I'm not having any symptoms from the GGO.
For the bone metastases, I am taking thea bone strengthener Zometa as an infusion every four weeks. Yes, 2024 was an interesting year.
-
Like -
Helpful -
Hug
3 Reactions