Anyone out there living with stage 4 lung cancer?

Yes was on Tagrisso, but it did not work for me. Am about to start Pemetrexed and Carbopltin every 21 days.

Hello @embersonia, I'm sorry that the Tagrisso wasn't effective for you. It can't work for all variants of the disease. This discussion may be helpful as you begin your next treatment regimen: https://connect.mayoclinic.org/discussion/carboplatin-plus-permetrexed/
How long ago were you diagnosed? I'm also stage IV, 4 1/2 years ago, ALK positive.

Hi. My Diagnosis was in August. Treatment started in Sept. Cancer is stage 4. When started treatment it was 4 x 4 cm. Scan in Dec. showed it had increased to 7 x 7.
Huge increase even on Tagrisso.
Starting Chemo on Jan. 3.
So disappointed the Tagrisso didnt work.

My history was generally similar. 4 months in my doctor added Cyramza to Optivo and Yervoy and 4 months later my PET scan shows the cancer has basically disappeared

@embersonia, I hope things go well for you tomorrow. I can certainly understand your disappointment with the first-line treatment. We don't always get to choose our treatments, but it's time to look forward to one that will work. Wishing you well. Let us know how things go.

@wgbethel, What a great response to treatment!
What stage are you? How long will you continue those treatments?

Had first chemo today. Went smooth. Hope the next 2 days go as well.

Thanks for your response. Stage 3 in March. Stage 4 in June. It began about 5cm x 5cm. In June it had spread to other lung and chest lymph nodes but not out of chest. My doctor then gave me a very bleak outcome. Soon thereafter he added Cyramza and I slowly got better. 3 weeks ago the PET total body scan showed no sign of cancer. I am now doing activities I did a year ago. Have tried to maintain a healthy diet and keep away from sugar. I live in the tropics and drink fresh lime juice. I have gotten so much support from friends. Bottom line I think the Cyramza did it. But I believe everything worked. 2024 was crazy but we must always strive for hope. I sincerely hope your treatment went well today.

So glad to hear your on the mend and enjoying life.
Cheers

I was diagnosed in November and have had 2 rounds (3 a week) so far. Another 2 rounds (spaced out every 3 weeks), coming in 2 weeks. It’s small cell carcenoma stage 4.