Lower spine pain after robotic Prostate removal

Posted by stantallusa @stantallusa, May 21 1:03pm

I had prostate removed using the robotic assistant in April 2018. Before surgery I lifted weights and walked between 5 and 10 miles per day. I have been a cripple ever since. No explanation from surgeons or other docs I have visited. I have had chiropractic treatments and physical therapy with no help. Had injections and finally nerve burning done. Temp relief at best. Now looking into some sort of stimulator being surgically implemented. I am hesitant to do this. Anyone have any suggestions? Thx

@stantallusa, I added your question to the Spine Health group (https://connect.mayoclinic.org/group/spine-health/) as well as the Prostate Cancer group. In the spine health group you will find several discussions about spinal stimulators. For example:
– Comparison of Spinal Cord Stimulators from Boston Sci., Nevro https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/
– Has anyone tried the HF10 Spinal Cord Stimulation Device? https://connect.mayoclinic.org/discussion/hf-10-spinal-cord-stimulation-device-relieves-back-and-leg-pain/
– Has anyone had the Stimwave spine stimulator installed? https://connect.mayoclinic.org/discussion/has-anyone-any-had-the-stim-wave-installed/

Stan, it sounds like the source or cause of the pain remains unknown. Is surgery an option?

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I want to avoid that. Ever person I have talked to that had back surgery said they would never do it again. Thanks for the info. I am going to look into the stimulation. Thanks again

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@colleenyoung

@stantallusa, I added your question to the Spine Health group (https://connect.mayoclinic.org/group/spine-health/) as well as the Prostate Cancer group. In the spine health group you will find several discussions about spinal stimulators. For example:
– Comparison of Spinal Cord Stimulators from Boston Sci., Nevro https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/
– Has anyone tried the HF10 Spinal Cord Stimulation Device? https://connect.mayoclinic.org/discussion/hf-10-spinal-cord-stimulation-device-relieves-back-and-leg-pain/
– Has anyone had the Stimwave spine stimulator installed? https://connect.mayoclinic.org/discussion/has-anyone-any-had-the-stim-wave-installed/

Stan, it sounds like the source or cause of the pain remains unknown. Is surgery an option?

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Everyone I know who has had spine surgery telll me don’t do it. They all say it got worse.

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What about the certified superion system

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@stantallusa

Everyone I know who has had spine surgery telll me don’t do it. They all say it got worse.

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Stan, I’d like to bring @jenniferhunter into this discussion. She’s written extensively about her experience and knowledge of Myofascial Release Therapy. I wonder if that might be a non-invasive option for you to investigate.

See this discussion:
> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Are your orthopaedic specialist and oncologist in communication with one another? Has it been confirmed that you do not have bone métastases?

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@colleenyoung

Stan, I’d like to bring @jenniferhunter into this discussion. She’s written extensively about her experience and knowledge of Myofascial Release Therapy. I wonder if that might be a non-invasive option for you to investigate.

See this discussion:
> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Are your orthopaedic specialist and oncologist in communication with one another? Has it been confirmed that you do not have bone métastases?

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@stantallusa Myofascial release is non invasive because it is just stretching tissue. However, if a person has cancer, stretching tissue can release cancer cells, so that would be a time not to use it. All surgeries create fascial scar tissue which gets tight and can cause pain. There is also a device called a Dolphin Neurostimulator which can release knotted muscles by passing a current through it. It has settings to dampen neurotransmitters and my PT used one on my spine at the nerve roots to lessen pain and spasms while I was waiting for spine surgery which stopped pain for about a week. What is your status with your oncologist?
The Dolphin can also be used like dry needling (which releases stored electric energy in muscle knots), but without the needles. It can send currents between 2 devices or on device and an electrode. Here is a link which shows what it is. https://www.dolphinmps.com/dolphin-neurostim-2/

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@colleenyoung

@stantallusa, I added your question to the Spine Health group (https://connect.mayoclinic.org/group/spine-health/) as well as the Prostate Cancer group. In the spine health group you will find several discussions about spinal stimulators. For example:
– Comparison of Spinal Cord Stimulators from Boston Sci., Nevro https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/
– Has anyone tried the HF10 Spinal Cord Stimulation Device? https://connect.mayoclinic.org/discussion/hf-10-spinal-cord-stimulation-device-relieves-back-and-leg-pain/
– Has anyone had the Stimwave spine stimulator installed? https://connect.mayoclinic.org/discussion/has-anyone-any-had-the-stim-wave-installed/

Stan, it sounds like the source or cause of the pain remains unknown. Is surgery an option?

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Well. I am at the end of my rope. Just requested an apt with Mayo
Hoping their experts can get to the bottom of this

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I just got a call from Mayo. Hoping I can get the help I need

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@stantallusa

I just got a call from Mayo. Hoping I can get the help I need

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Fantastic. As you prepare for your appointment, you may appreciate the guidance fellow members offer in this discussion:
– Your Tips on How to Get Off to the Best Start with a New Specialist https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/

And other discussions in the Visiting Mayo Clinic group https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/

Which location will you be going to?

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@colleenyoung

Stan, I’d like to bring @jenniferhunter into this discussion. She’s written extensively about her experience and knowledge of Myofascial Release Therapy. I wonder if that might be a non-invasive option for you to investigate.

See this discussion:
> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Are your orthopaedic specialist and oncologist in communication with one another? Has it been confirmed that you do not have bone métastases?

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Had a bone scan. Found no cancer anywhere at that point

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@stantallusa

Had a bone scan. Found no cancer anywhere at that point

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@stantallusa Stan, are your doctors looking for the source of your spinal pain? Mayo doctors can refer you to other departments if they see the need to do so. I'm glad your scan was clean. That is some good news. My first spine related appointment at Mayo was with a neurologist who looked for causes of nerve issues and who also ordered other tests before I saw a spine surgeon there.

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Thanks. I am trying desperately to get an appointment at Mayo. I realize that most doctors only treat symptoms. No dr here, and I have been to way too many, has ever tried to figure out how a physical very healthy male can go from lift weights and walking 10 miles per day to a cripple in 24 hours. I really think Mayo is my only hope. Thanks for the response.

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