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low dose naltrexone treatment

Posted by kentkemmerling1949 @kentkemmerling1949, 6 days ago

It was recommended to me to try this low dose naltrexone therapy to try to improve my long COVID symptoms. My primary problem is dizziness that leads to poor balance. I walk using a rollator most of the time for safety reasons. This limits my life a lot since I can't go far on the walker. We traveled, fished, hiked and just were active until COVID in 2020. Since then I have been basically trapped. I can't help around the house as much, which puts an unfair burden on my wife. I was told that this low dosage approach has been tried a lot. Has anyone out there done this and can you share your experiencs, both good and bad? Thank you so much.

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carlosmayo | @carlosmayo | 3 days ago

Use the search function and you can find several other long threads about Naltrexone. I like Lucy found it very helpful.

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md11 | @md11 | 1 day ago

Has anyone had severe muscle cramps on LDN?Started with 1 mg dose which caused dizziness and heart palpitations. Lowered to .1 mg and increased until
.5 mg but determined anything over .3 mg caused the muscle cramps. Have never heard of anyone else ever having any type of side effects from LDN. Definitely helped with pain but not fatigue. Thanks.

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1 reply
Athena Atkins | @athenaatkins | 1 day ago
In reply to @shirljk "Hello, I started taking Low Dose Naltrexone (LDN) probably 5 years ago. I take it fibromyalgia..." + (show)
@shirljk

Hello,
I started taking Low Dose Naltrexone (LDN) probably 5 years ago. I take it fibromyalgia and Chronic Fatigue. I believe it helps tremendously with the Fibromyalgia; I think the side effect on not having constant debilitating muscle and joint pain translates into less fatigue. When I had Covid in November 2023, I went to Mayo Clinic, the long covid program a number of months later. I was asked about taking the LDN, was it helping my Long Covid. I said I couldn't tell because I was on it before I got long covid. I believe that it does help, because I have not experienced a recurrence of pain. Fatigue increased for months, but that is more manageable now. Unfortunately, I don't think it helped with the dizziness, I agree that not overdoing it and pacing myself is the biggest help with that. I am quite sure I would have pain and headaches if I were not on LDN. I went off it twice at my doctors request, and the Fibromyalgia and general pain, headaches came back, which brought back more fatigue. He said he just wanted me to test it to remember why I'm on it. I am on the recommended 4.5 mg. for Fibromyalgia, took me several weeks to get up to that amount. In my experience, it is rather benign drug, I have no side effects and very low dose and is amazing for me to keep me out pain. And I don't take any prescription medicine except a compounded thyroid med, because I get side effects from any I have tried.

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I am on naltrexone at 2 mg a day, and I can second that it has helped with the fibromyalgia-like muscle aches and pains that Long Covid has caused me, but it hasn’t really helped me with much else (fatigue, autonomic dysfunction, chest pain, headaches). It’s a good tool for the LC treatment toolkit, but it is not a panacea for all LC symptoms in my experience.

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thisnthat | @thisnthat | 1 day ago

After restarting LDN (which I had taken prior to LC for autoimmune issues), I noticed an accelerated improvement in my parosmia. Still taking LDN, although not seeing much additional change….although my parosmia is now limited to just a few smells. Hoping tincture of time will take care of the rest!

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sandguy | @sandguy | 22 hours ago
In reply to @md11 "Has anyone had severe muscle cramps on LDN?Started with 1 mg dose which caused dizziness and..." + (show)
@md11

Has anyone had severe muscle cramps on LDN?Started with 1 mg dose which caused dizziness and heart palpitations. Lowered to .1 mg and increased until
.5 mg but determined anything over .3 mg caused the muscle cramps. Have never heard of anyone else ever having any type of side effects from LDN. Definitely helped with pain but not fatigue. Thanks.

Jump to this post

Wow!
You are taking very low doses!
The typical dosage, as per several trials and recommendations of LDN is between 1.5 and 5 mg.
I started out at 1.5, felt no effect and doubled it, and have begun a 4.5 mg regimen, still awaiting some effects.
I'm not trying to minimize you reactions--and I'm sympathetic--but you seem to be either extremely sensitive, or perhaps you might be allergic(?). Might you be on other meds that could cause a co-reaction?
It might not be a good choice for you; we all vary so much in what's helpful as well as with our symptoms (almost solely fatigue, in my case).
Best of luck, and thanks for sharing.

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