Lost my ability to sleep and other serious issues

Posted by hello123yes @hello123yes, Feb 5, 2022

Hi everyone,

Here’s my story in hopes that someone can help me.

Prior to Nov 25 I was taking Lions Manes mushroom and on the 25th I smoked marijuana which gave me a panic attack. Now I believe I developed Central Sensitization syndrome (due to lions mane increasing NGF which can lead to CSS under the right circumstances) due to this because that night of the panic attack I was wide awake and up all night. Now it’s like my body and mind won’t shut off. There’s too much activity in my nervous system.

Since that night I haven’t been able to sleep more than 1-2 hours per night even with a benzo. The past week I haven’t slept at all. I’ve been to the hospital and they couldn’t help me. It’s like my brain won’t shut off and there’s too much activity in it. It physically feels like I’m drinking coffee hourly which I’m not. This has all been happening for over 2 months after supplementing with Lions Mane and then having marijuana.

I’m not sure if the Lions Mane mushroom daily for 2 weeks then taking marijuana that one day had an adverse reaction with each other or not, but ever since the morning after I haven’t been the same sleep wise among other issues. The other issues I’ve been experiencing are internal vibrations for the past month, twitches in my neck, legs, and hands, diahrrea every day, sore legs, and disorientation. The internal vibrations worry me that I may have a neurological disorder. I have an appointment with a neurologist in two weeks. The main issue is I’m not sleeping at all, it’s like I’ve lost that ability.

I feel somehow the Lions Mane and marijuana could had given me brain damage because after Nov 25 I haven’t been the same person. I don’t know how or if this is true but my life has been turned upside with all my symptoms.

Does anyone know whether I might have a serious issue or how I can further look into why it appears I’ve lost my ability to sleep?

Interested in more discussions like this? Go to the Sleep Health Support Group.

@colleenyoung

@santosha, the community would be grateful if you would share your experiences with insomnia, treatments and activities that have helped you. This way your journey and knowledge will not only benefit @cmd, but many others too.

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@colleenyoung, Good Morning
First of all, my excuses for taking so much time to reply to your message. Quite busy times over here.
I am more than happy to share my experiences with the group, as I have been already doing.
In this situation, I have offered cmd (Carolyn) the possibility of a private exchange as I could feel her despair for sleep, having lived that myself in 2019 and 2020. Just wanted to better understand her situation and try to help.
As I have already shared here in the group, yoga nidra has been one of the things that have helped me a lot in my search for more sçeep and with more quality. I also practice hatha yoga and have been learning to let go & surrender more. CBD (Medical Marijuana) has also helped me much, as I have posted some time ago. I have also made use of acupuncture and some diets. None of those heavy drugs have given me back a good and restorative sleep. More and more I have been finding my answers in the integrative medicine approach.
Have all a great day!
PS: I will be on holiday for 30 days and might not be very participative in this period.

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I was referred to Michael Grandner, of the University of Arizona Sleep Department for cognitive behavior help with sleeping habits. It helped within a couple of months! You have to be open to taking advice and putting it into action. He has a diary to keep, plugs in values to an algorithm and then advises based on that. I was able to see some of the problems, myself. I have had insomnia for years and felt like I was over-medicating (THC/CBD, Percoset, NSAID, etc) in the search for oblivion. It isn't perfect, but with a regular wake up time, a few minutes in the morning sunshine, short nap before 3 pm and not going to bed too early--I only need an 8 hour window--much of the problem is gone. If you have GERD or reflux, eating a few hours before bedtime, chamomile tea may help, too. You might need a visit with a gastroenterologist.

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@hello123yes

I'm in Canada and wish we had something like the Mayo Clinic here. The healthcare system is free, but it's incredibly slow so if anyones in need of help fast then it's too bad. Also, doctors here don't seem to care about things they can't see in my case.

Thank you for the advice. The thing is with my issue and because of internal head tremors it feels like my eyes are shaking somtimes so it's become extremely hard to stay focused on reading and staying still. I was completely ok 3 months ago. I still really don't know what happened, but believe the mushroom/marijuana did something to me. I think I'll never find out exactly what happened, but that's ok.

I do enjoy being outdoors. I'll take a walk later 🙂

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Hi ,
I also started getting internal tremors after taking lions mane which I thought was a coincidence since it’s supposed to be good for the central nervous system . I only took it constantly for a couple week , power form 1/4 teaspoon.
The tremors have continued and in my 6 month now .
Has anything helped your tremors ? Have doctors found the cause or anyone suggest a solution.

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@rocean

Hi ,
I also started getting internal tremors after taking lions mane which I thought was a coincidence since it’s supposed to be good for the central nervous system . I only took it constantly for a couple week , power form 1/4 teaspoon.
The tremors have continued and in my 6 month now .
Has anything helped your tremors ? Have doctors found the cause or anyone suggest a solution.

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Welcome @rocean, I'm wondering if you might find this discussin helpful -- Essential tremors: any ideas on coping and managing tremors?: https://connect.mayoclinic.org/discussion/essential-tremors-1/

Have you seen a doctor about the tremors?

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@johnbishop

Welcome @rocean, I'm wondering if you might find this discussin helpful -- Essential tremors: any ideas on coping and managing tremors?: https://connect.mayoclinic.org/discussion/essential-tremors-1/

Have you seen a doctor about the tremors?

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Hi,
Thank you for that link it’s greatly appreciated .
Just for further insight it’s more like a full body internal vibration rather then a tremor in an isolated area , it is throughout my body , more curious to know whether anyone else has had those symptoms since taking lions mane?
The doctor I went to basically brushed it off . I do have bulging disks in multiple areas of my spine/neck and initially though maybe weekness from my spine / neck was causing what looks like very light tremors in my head area, the first area I noticed ( you can just see it because my hair shakes , only way to explain it ) but I do have the vibration throughout my body plus I often wake from sleep to complete shaking . So very concerned about the nervous system , however I did Google lions mane and internal vibrations / tremors as it seemed to have started around that time which is why I stumbled across the post .

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I am so sorry to hear what you're going through. We take things for our body hoping everything goes well without knowing the side effects. I've been having trouble sleeping too. Hope you find help, comfort and resolve so you can come back and share any updates. Thanks take care and hope you get well soon. Godspeed

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@rocean

Hi,
Thank you for that link it’s greatly appreciated .
Just for further insight it’s more like a full body internal vibration rather then a tremor in an isolated area , it is throughout my body , more curious to know whether anyone else has had those symptoms since taking lions mane?
The doctor I went to basically brushed it off . I do have bulging disks in multiple areas of my spine/neck and initially though maybe weekness from my spine / neck was causing what looks like very light tremors in my head area, the first area I noticed ( you can just see it because my hair shakes , only way to explain it ) but I do have the vibration throughout my body plus I often wake from sleep to complete shaking . So very concerned about the nervous system , however I did Google lions mane and internal vibrations / tremors as it seemed to have started around that time which is why I stumbled across the post .

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@rocean I should have mentioned there is also a few other discussions on internal vibrations that may also be helpful:

-- Internal vibration with "nerve firing": https://connect.mayoclinic.org/discussion/internal-vibration-with-nerve-firing/
-- Has anyone experienced internal vibrations?: https://connect.mayoclinic.org/discussion/internal-viberations/

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Obviously I am not a physician but it seems that your symptoms seem to be related 2 panic attacks. Hopefully given a bit more time go back did your normal routine!

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@hello123yes did you fond a solution for you sleeping issues? Or still it is the problem?

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Wow. My body has been vibrating for extended periods for the past 2 years and I had no idea why. But now that I have read about your experience hello123yes, it does correlate with me taking Lions Mane mushrooms! So thanks for putting that out there. I rarely use cannabis though, because taking only 2 puffs makes me feel very tired.
Does your lack of sleep make you feel tired? Are you taking any herbal supplements? Because many of them contain natural MAO inhibitors. After I had a concussion I started taking quite a few of them which I had on hand and before I knew it, I was only sleeping 3 hours a night and waking up feeling great!!!
The body/mind is complex and not everyone responds in the same way. I hope that you figure it out.

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