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Loss of voice after Arikayce nebulizer
I am 70 years old, still working part time. I was started on triple antibiotics a year ago. My sputum is still positive after 1 year of triple therapy. I started on Arikayce nebulizer last week. 4 days after, in the morning I lost my voice. Could'nt even whisper or cough. No pain or difficulty breathing! My ID doc said to hold nebulizer for 1 week. I can whisper now but so difficult at work.
Any advice on how and when to restart the nebulizer?
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Screen shot of side effects of Arikayce!! See below
I lost my voice shortly after my last bronchoscopy in Feb and haven't gotten it back yet. I went to an ent who went down with a camera and showed me them. He said if it clears up in a couple of weeks it's just from the frequent breathing treatments over time (4x a day for 2 weeks, 3x a day for 7 weeks now just 2x a day: albuterol then hypertonic saline). Because the stronger percentage (7%made things worse and dropping to 3, then 0.9% made it better he deduced that's the reason. I'll find out in a couple of weeks when I go back. Vocal cords can get infected with mac, aspergillosis (since I'm still positive) or yeast infections from inhaled steroids. If I'm not clear I'll have to do a biopsy.
I was told by Arikayce care coordinator to not have people or pets within about 4Ft when doing treatment because if they needed amikacin in the future it may not be susceptible.