Like many of you on here I have many symptoms- some diagnosed and some undiagnosed. I have been diagnosed with several autoimmune disorders, have had GI issues my entire life, and have recently had neurological symptoms and have been given another diagnosis that falls under the umbrella of neurology. My neurologist, who previously worked at MAYO recently submitted a very thorough application for me to MAYO. To my disappointment, my application was denied.
I’m trying to keep all of this short, but my symptoms became debilitating shortly after an emergency hysterectomy at 35. I was hemorrhaging due to a large fibroid that was both submucosal and intramural. Shortly after this, I began to have neurological pain, other symptoms, and eventually developed nausea that has been completely debilitating.
I wasn’t given any information as to why I was denied- the woman on the phone only told me that they didn’t believe there was anything else that MAYO could do to help me. After reading through various forums, I am aware that my doctor can appeal my case, or that I can reapply/fill out the questionnaire myself.
1. Is there any information regarding how to make your case more appealing/more likely to be accepted at MAYO?
2. I have seen several people on various forums who were accepted for treatment at MAYO, make reference to how they included “case studies” of persons with similar symptoms to their own on their applications. I’m curious if there is a specific database in which one should reference case studies? Or are these people including information from google searches, where they have found persons with similar symptoms and their corresponding diagnoses?
Currently, I’m looking more for help in having my application accepted, and less interested in suggestions regarding my various symptoms.
Any tips, or information to help aid in my acceptance would be much appreciated. Thank you for your time; I really appreciate all those who are so kind to read my posts, and am so grateful that people are willing to help others in their attempts to do all they can to live a happy and healthy life!