I made this account for my wife, I'm hoping it will result in a helpful community where she can find support. Lately, she's been breaking down in tears because we have nowhere else to turn for answers and all she wants is a simple "what is wrong with me" diagnosis. After 6 surgeries, 9 different doctors, three hospital networks, and at least 5 specialists she's been given no guidance and a few "well it really could be anything" answers. I can't watch her suffer anymore, it's tearing us apart. She is at wits end so I told her, maybe it's time we seek out the best of the best and go to Mayo clinic. The last two months she has needed a break from any more tests, but I asked her to just give it this one more shot… apply to Mayo clinic. If anyone can help you find out what is wrong, they can. She reluctantly filled out the application, received a call, completed the questionnaire and was starting to get some energy back to address these issues head on…… then she gets an email… DENIED from Mayo clinic and she's deflated again.
I've been reading all your forums, about how to get an appointment, about "calling the customer care line" and other such tips. I can tell you, listening to how disappointed she is… isn't going to help. She needs to see someone and if you don't believe Mayo is the best place… where else can address all these issues at once: 14 kidney stones (surgery), endometriosis (surgeries), ovarian cysts (surgery), possible Rheumatoid Arthritis, chronic migraines, allergy to elevated heart rate, low libido, joint pains, etc. There are more, but those are just the ones from the last 3 years. How do they deny someone like this?
With this post, I'm hoping someone in the community can offer us an alternative because she is about to give up on ever finding out what's wrong, and I can't let her lose hope. We've been to all the "top rated hospitals" in Chicago to no avail. Where else can we turn for answers?
This forum post is my last desperate attempt to get her the help she needs… Please don't tell us to call customer care if it won't result in an appointment.
Liked by EES1