Looking for others with Pulmonary embolisms

Posted by kjcarlson @kjcarlson, May 2, 2023

Have had multiple pulmonary embolisms. Looking for others to support and be supported.

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I take aspirin also for stable angina that apparently I have but I still developed another clot.

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@gina5009

have they tried Baby Aspirin. I am 92 and had a blood clot following surgery. I have been on aspirin for about 20 years now and have not had another blood clot.

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That's great news. I was taking asprin but still got bilateral pulmonary embolisms. Hopefully you don't have any more clots!

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@angel14

Yes apparently in my last scan I have now got an extra one

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Well that's not good. So since you're already on blood thinners, how fo they treat that?

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@angel14

I take aspirin also for stable angina that apparently I have but I still developed another clot.

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Ok so you'll be on blood thinners then?

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Have they found the cause of your clots. Usually it is something like Atrial Fibrillation. I know a couple of people who have had Ablation which knocks out the electrical system in the heart that is causing the clots. Many times the clots form in the legs if people have varicose veins. Compression socks seem to help a great deal. And there is a new procedure where they put a filter in the Carotid Artery and this prevents clots from getting to the brain.
You might want to ask your doctor about any of these possibilities.

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I’ve got small PEs being treated with Eliquis. Hopefully that works.

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@kjcarlson

Well that's not good. So since you're already on blood thinners, how fo they treat that?

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I e just been given another 6 months on this blood thi net and in October have another scan and then might have to go on warfarin or clexane injections.

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I had a pulmonary embolism a few years ago and have been taking warfarin ever since. They could not find any cause. I had a severe sinusitis a couple weeks ago and developed a bad cough with chest pain. I’ve had 2 chest X-rays 2 weeks apart and now I’m showing a part of my left lung is not inflated. Wonder if this could be another PE. Waiting to schedule a Ct scan

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@beverlyjean

I had a pulmonary embolism a few years ago and have been taking warfarin ever since. They could not find any cause. I had a severe sinusitis a couple weeks ago and developed a bad cough with chest pain. I’ve had 2 chest X-rays 2 weeks apart and now I’m showing a part of my left lung is not inflated. Wonder if this could be another PE. Waiting to schedule a Ct scan

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Warfarin was tough for me I could not seem to stay even, either too high, or two low and was constantly at the clinic. I have been on baby aspirin for a very long time now, and have not had another blood clot. Compression socks frequently are offered as they seem to be on the list of possible helps for blood clots. Might ask your doctor about these
Gina5009

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@sonshine161

I’ve got small PEs being treated with Eliquis. Hopefully that works.

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I had two one in my knee and one in my lung when the found them they put me on Eliquis and they were both gone in 3 months. That was 6 months ago they disappeared and I still have no sign of anymore showing

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