Looking for others with Pulmonary embolisms

Posted by kjcarlson @kjcarlson, May 2, 2023

Have had multiple pulmonary embolisms. Looking for others to support and be supported.

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I had a pulmonary embolism a few years ago and have been taking warfarin ever since. They could not find any cause. I had a severe sinusitis a couple weeks ago and developed a bad cough with chest pain. I’ve had 2 chest X-rays 2 weeks apart and now I’m showing a part of my left lung is not inflated. Wonder if this could be another PE. Waiting to schedule a Ct scan

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@kjcarlson

Well that's not good. So since you're already on blood thinners, how fo they treat that?

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I e just been given another 6 months on this blood thi net and in October have another scan and then might have to go on warfarin or clexane injections.

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I’ve got small PEs being treated with Eliquis. Hopefully that works.

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Have they found the cause of your clots. Usually it is something like Atrial Fibrillation. I know a couple of people who have had Ablation which knocks out the electrical system in the heart that is causing the clots. Many times the clots form in the legs if people have varicose veins. Compression socks seem to help a great deal. And there is a new procedure where they put a filter in the Carotid Artery and this prevents clots from getting to the brain.
You might want to ask your doctor about any of these possibilities.

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@angel14

I take aspirin also for stable angina that apparently I have but I still developed another clot.

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Ok so you'll be on blood thinners then?

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@angel14

Yes apparently in my last scan I have now got an extra one

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Well that's not good. So since you're already on blood thinners, how fo they treat that?

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@gina5009

have they tried Baby Aspirin. I am 92 and had a blood clot following surgery. I have been on aspirin for about 20 years now and have not had another blood clot.

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That's great news. I was taking asprin but still got bilateral pulmonary embolisms. Hopefully you don't have any more clots!

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I take aspirin also for stable angina that apparently I have but I still developed another clot.

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@angel14

I’m almost 54 and in 2021 I was diagnosed with multiple embolisms . Early this year I had another scan after being on and continuation on blood thinners . All s clots still pleasant and I’ve grown an other one! So 6 more months on the blood thinner pradaxa and then I have another ct scan. Have been threatened with warfarin or another starting with c I can’t remember which is daily injections

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have they tried Baby Aspirin. I am 92 and had a blood clot following surgery. I have been on aspirin for about 20 years now and have not had another blood clot.

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Yes apparently in my last scan I have now got an extra one

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